Hello. I had my surgery a month ago and for the second time that I’m aware of, today I felt a little pressure on my eye. I looked in the mirror and that eye, the right one, clearly wasn’t open anywhere near as much as the left, despite the fact that all my problems have been on my left. I called my surgeons office and left a message but he didn’t get back to me. I’m wondering if anybody has had this symptom. I don’t know if I should be scared. It didn’t hurt. I was just able to feel it but I can’t help but wonder the cause. Thanks. - TracyJessica
I have had the same thing. My surgery was in 2008. It has happened about three times since then. I went to the er twice because it scared me. They could never find a reason and my surgeon never said why. It usually goes away after a few hours. Freaks me out!
I had my surgery 2 years ago my right side of my head is what bothers me with pressure and my eye is drooping the right one and has sharp pain in it sometimes it has been like that since my surgery.
I have this, but it normally happens when a strong weather front is around. I had never paid attention to my eyelid drooping, but my husband had. The doctor saw my eyelid drooping so he ran tests to rule out a stroke. He said nerve damage from my spine could cause the same problem. He explained how many nerves each human has in a square inch of their body & how hard it is to find the nerve that is misfiring. My eyelid is normal most of the year.
Jessica, do you have a syrinx with your Chiari? Maybe that could be causing your eye to droop?
KLG209, Thanks for sharing that. It really does freak you out. It helps to hear that others have had that symptoms without anything crazy happening.
klg209 said:
I have had the same thing. My surgery was in 2008. It has happened about three times since then. I went to the er twice because it scared me. They could never find a reason and my surgeon never said why. It usually goes away after a few hours. Freaks me out!
Toni,I do have a large syrinx, but still dont understand the connection.amount
Toni said:
Jessica, do you have a syrinx with your Chiari? Maybe that could be causing your eye to droop?
Goingcrazy, I’m very sorry to hear this. So you did not have this problem before surgery? Has your surgeon given you an explanation for this?
goingcrazy said:
I had my surgery 2 years ago my right side of my head is what bothers me with pressure and my eye is drooping the right one and has sharp pain in it sometimes it has been like that since my surgery.
Fentonfan, thank you. That makes sense even without an exact explanation, it really makes sense!
FentonFan said:
I have this, but it normally happens when a strong weather front is around. I had never paid attention to my eyelid drooping, but my husband had. The doctor saw my eyelid drooping so he ran tests to rule out a stroke. He said nerve damage from my spine could cause the same problem. He explained how many nerves each human has in a square inch of their body & how hard it is to find the nerve that is misfiring. My eyelid is normal most of the year.
no it was not like that before I has my surgery. no I have not seen my surgeon since my surgery after I got released from him but my neurologist said I have a lot of muscel damage do to the chiari my brain sem was groing down in my spinal canal when I had first found out that I had this my hole body had went num I thought I was having a stroke
jessica said:
Goingcrazy, I'm very sorry to hear this. So you did not have this problem before surgery? Has your surgeon given you an explanation for this?
goingcrazy said:I had my surgery 2 years ago my right side of my head is what bothers me with pressure and my eye is drooping the right one and has sharp pain in it sometimes it has been like that since my surgery.
I’m sorry you have to deal with that. We’re you diagnosed late in the game? I was and that scares me also. When young people show up here newly diagnosed but have a syrinx, I always tell them it may feel quite unlucky to have this diagnosis, but they have something not everyone does, a chance to head it off early before a ton of damage is done. It will probably just get worse over time, but it never just gets better or goes away. My warmest wishes to you.
goingcrazy said:
no it was not like that before I has my surgery. no I have not seen my surgeon since my surgery after I got released from him but my neurologist said I have a lot of muscel damage do to the chiari my brain sem was groing down in my spinal canal when I had first found out that I had this my hole body had went num I thought I was having a stroke
jessica said:Goingcrazy, I’m very sorry to hear this. So you did not have this problem before surgery? Has your surgeon given you an explanation for this?
goingcrazy said:I had my surgery 2 years ago my right side of my head is what bothers me with pressure and my eye is drooping the right one and has sharp pain in it sometimes it has been like that since my surgery.
What is syrinx? I have been diagnosed with Chiari (herniating into my brain stem) , but have no care from anyone anywhere. They told me not to worry about it---even though the symptoms put me in ICU for 2 weeks while they diagnosed it after I had extreme tachycardia/heart attack and ER flown to University of Nevada Med. Center.....I need a doctor who is expert---PLEASE Help me :-(
A syrinx is a growth in the spine caused by chiari. It is a build up of spinal fluid due to chiari basically plugging the top of the spine and stopping the flow of the spinal fluid (or CSF). A syrinx (or the condition known as syringomyelia) is very dangerous. There is a list here of doctors who specializes in chiari. Go to top of home page. It is very important that you find a doctor right away. Unfortunately, we run into that a lot. The whole don’t worry about it crap. Even though you were in the hospital with such serious issues. My guess is that the doctors knew nor about chiari and couldn’t connect the problems or didn’t for ego reasons. Best wishes. Educate yourself, but at this point, find a
Chiari specialist and run
Vix said:
What is syrinx? I have been diagnosed with Chiari (herniating into my brain stem) , but have no care from anyone anywhere. They told me not to worry about it—even though the symptoms put me in ICU for 2 weeks while they diagnosed it after I had extreme tachycardia/heart attack and ER flown to University of Nevada Med. Center…I need a doctor who is expert—PLEASE Help me
