I was diagnosed in August with CM. This week I started stuttering. I can’t control it. My students thought it was funny at first but now it scares me. Do any of you have stuttering issues? How do you handle them?
Thank you Emmaline for sharing.
Yes!! I have always been a fast talker, and after my surgery in April I would stutter and slur my speech. I have made major improvements over the past almost 6 months, and the doctors said it had nothing to do with my surgery. I started thinking I was crazy, or it was the medication. I cannot remember if it was happening before my sugery. I do know I would loose focus a lot, but I just thought I was anxious and distractable.
My daughter has chiari I have many symptoms of chiari after. 6 months of waiting get to finally see a neurologist tomorrow ! My reg Dr. Thought I had MS but says MRI didn’t show MS or Chiari and he’s at a loss for all my issues. I started stuttering about a year ago. , also started to forget words and could say words in my head but can’t say them out loud it comes and goes. Nice to know there are others with same issues
I have brain fogs, I forget things, short term memory and I freeze in misdle of conversations and have to apologize.
How many millimeters is your Chiari, one or two sides of brain and have they conducted a MRI video of your brain to see how the csf fluid is flowing around your brain. For example mine is not a 5mm, right side pain only and they just found my csf is not flowing through the back of my brain properly or at all at times but it’s flowing normally in the front which is causing a lot of these issues, pain and side effects. Educate yourself. Dont be afraid. Stay in touch with this wonderful group. I was diagnosed this year. Im a 44 yr old mother of 3. God bless you.
Now a 5mm. Correction
Jozy said:
I have brain fogs, I forget things, short term memory and I freeze in misdle of conversations and have to apologize.
How many millimeters is your Chiari, one or two sides of brain and have they conducted a MRI video of your brain to see how the csf fluid is flowing around your brain. For example mine is not a 5mm, right side pain only and they just found my csf is not flowing through the back of my brain properly or at all at times but it’s flowing normally in the front which is causing a lot of these issues, pain and side effects. Educate yourself. Dont be afraid. Stay in touch with this wonderful group. I was diagnosed this year. Im a 44 yr old mother of 3. God bless you.
My husband developed a speech condition called echolalia after his symptoms returned. It sounds like a stutter, he repeats syllables, parts of words, and sometimes full words. It took a little bit to figure out what it was- his gp, whom we go to for symptom management, has only seen three cases including his in over thirty years in medicine, med school and practice combined. He said it is similar to tourette’s, but the parts of speech that are affected are different. We have no idea why he developed it after his surgery, eighteen months symptom free, and a sudden return of symptoms, and why he never showed signs of it with his first symptom appearance. None of the specialists we saw after his symptoms came back could come up with an explanation.
You are not alone! Good news is that it subsided after a pop in my head and the pressure sensation went away. I recently saw Dr. Oro in Colorado and I highly recommend him. They work in a team and are very receptive to our needs.
Quilt, I’m so sorry. I hope that the surgery puts you back to normal again.
Quiltaholic said:
I stuttered and slurred my speech before surgery for years. Had the surgery and it stopped. Started a CSF leak a week ago and now I am stuttering and slurring again. The other neurological symptoms are back with a vengeance. I'm certain another surgery is in my immediate future. Very disappointed after getting my life back after 26 years. I have to believe repairing the leak will get me there again.
My son woke up one day from a nap stuttering sevely, 6-7 times on every vowel. For the last three years it comes a and goes in 2-3 month incraments. I feel it is associated with the humidity, heat, pressure, sinues pressure, etc.
Yes, yes, and yes, two weeks after my surgery I started to stutter, I have had this problem for 16 months, my primary care doc put in a referral to a speech therapist, it’s been a long road but it has definitely helped! I would highly recommend it! Until then I will leave you with this…
Dear Heavenly Father I come to you to ask that you send the Holy Spirit not only to Cocoa, but to her team of physicians, that they will see the urgency of her conditions and get her to the right care! Father she is your daughter and is crying out for help. Guide her Lord, give her peace and rest, wrap her in your arms of grace and healing, in your mighty name we pray…AMEN! Hang in there Cocoa, help is on the way! God bless you and your family, I’m here to help as much as I can! Have a blessed day!
Shay
Shay, you did it again! Beautiful!
VetDad said:
Yes, yes, and yes, two weeks after my surgery I started to stutter, I have had this problem for 16 months, my primary care doc put in a referral to a speech therapist, it's been a long road but it has definitely helped! I would highly recommend it! Until then I will leave you with this...
Dear Heavenly Father I come to you to ask that you send the Holy Spirit not only to Cocoa, but to her team of physicians, that they will see the urgency of her conditions and get her to the right care! Father she is your daughter and is crying out for help. Guide her Lord, give her peace and rest, wrap her in your arms of grace and healing, in your mighty name we pray...AMEN! Hang in there Cocoa, help is on the way! God bless you and your family, I'm here to help as much as I can! Have a blessed day!
Shay
I'm new to this Chiari thing. I don't even know if I have it. I had an MRI scan and it showed up that I have low lying Cerebellar tonsils typically seen in Chairi Malformation level 1 patients.
I've always had speech problems and slight stuttering. I had no idea that was a symptom of Chiari until I stumbled across this thread.
Shay you are just precious! God bless you!!
Somtimes....not often.
sometimes
It seems to me that I have been having this problem a lot more since my surgery. 
OMG yes, this problem started for me back in May around the time I found out I had chiari. I have had 2 surgeries first one was July 12th second one just recently on September 6th and it hasn’t gotten any better. I have to stop at times and think about what I’m trying to say