Chiari doctor's in PA?

General
1

I had my decompression surgery and I am still experiencing severe symptoms. My NL is a joke. My NS says she did her job. They want to refer me to pain management. My question is...Does anyone know of a Chiari doctor in PA that deals with the symptoms post-op?

2

Hi...

I am so sorry that you are still suffering after your decompression...When was it done???

Every NL I ever saw was a waste of time , cash and I agree...I joke!

I am sure Alicia will post her doctor...she lives in PA.

Keep us posted.

Peace,

Lori

3

nicolee,

I did a quick search on the net for docs follow link below- I DO NOT KNOW ANY OF THEM NOR AM I ENDORSING THEM----but take a look at the 2 links below ...Good Luck

I mean sure i understand they did their job but really do they have to be so bruital about it esp when THEY KNOW its so hard to find a GOOD NL... it just gets my goat sometimes on how little caring the NS's actually show sometimes!. ~Lisa

this comes up as a PDF file which comes from a Chiari patients blog http://www.thesmfoundation.org/Reference/Doctor_List.pdf

scroll almost all the to the bottom of the page until you see Pennsylvania http://www.chiariconnectioninternational.com/doctorlist.html

4

THANK LISA!!!

You are so great!!!!

5

Dr. Robert Schlegel in York/Gettysburg, Pa

He is my NS and has seen me since 2003 for check ups to keep an eye on the Chiari and also if I need anything I call him. He's a great doctor.

6

Wow…I thought I was alone. My NS told me he fixed the Chiari and sent me to another NL ( because I hated the first one I went to). She told me that the numbness and tingling in my fingers and oes, the memory loss and the fatigue must be due to Lupus. (I’ve had is discoid lupus since 04). My eye doc and my ear doc told me that the broken blood vessels in my eye and ear are probably from Lupus. Go to the rheumatologist today…he says no these symptoms are not from that, even though my blood work howled a high ANA.

So now he says I have to find a NS that specializes in Chiari malformation and find out how long is appropriate to feel this way. I’m going to have to look for someone else now!

7

Ugh! Sounds exactly like my story! I have also been having awful pain in my c-spine and no one knows why. I just requested an MRI for it, but insurance denied it and said I need 6 wks of PT. So frustrating. I woke up this morning with severe burning around the vertebrae that hurts. It is a constant battle. Sometimes I feel like they are making it hard on purpose. We have enough to deal with as it is and the fight for good care is getting old. Hope you have a good day!

Sslakemom2 said:

Wow...I thought I was alone. My NS told me he fixed the Chiari and sent me to another NL ( because I hated the first one I went to). She told me that the numbness and tingling in my fingers and oes, the memory loss and the fatigue must be due to Lupus. (I've had is discoid lupus since 04). My eye doc and my ear doc told me that the broken blood vessels in my eye and ear are probably from Lupus. Go to the rheumatologist today...he says no these symptoms are not from that, even though my blood work howled a high ANA.

So now he says I have to find a NS that specializes in Chiari malformation and find out how long is appropriate to feel this way. I'm going to have to look for someone else now!