So I have a new blogpost...and something of a favor to ask. :)
Here is the blog post: Chiari-Life Brave
Disney Insider Newsletter was advertising for the new movie Brave. They wanted people to "Share your Brave Story" so I did....here is my Chiari Brave Story....check it out and click the LIKE button. Help my story get featured! This could be a good way to get some awareness!!
Disney - Alicia - Brain Surgery
Hope you're all doing well!
Excellent.....Hope you get featured. Great story and description. Good Luck
I just voted for you! You are brave! My 15 yr old son was just diagnosed with Chiari last week and just found out last night that he has a syrinx as well. I read that you had your surgery at 15, how did it go and how do you feel now? Did you see more than one neuro? Epwhere did you have surgery? Feel so helpless and I just want him to feel good and get the best care possible so he can resume his life.
Good write up.
Diana