Im 4 weeks nd 3 days post op and still feel awful. I still have really bad headaches, cant stop getten sick, cant sleep a full nite and cant eat. I taut things wud have improved by now but they havent, just been realsed from hospital wednesday becoz i caught an infection. Did or does anyone eles still have these probs and when can i expect to feel myself again im missen ot on my sons life and my own any advice wud help. And if ye have any suggestions to help me feel better id be greatful to hear them.
I am so sorry you are having post op challenges. You are still healing from your surgery. I know it's awful. Some days I just had to concentrate on breathing to get through the day. I hope as time goes by you start to feel better. I lived off Cheerios & Sweet Tea for two months. Try to eat as much protein as possible. It is supposed to make you heal faster. I was also encouraged to walk as much as possible. Please know it just takes time. I will be praying for you & your family.
Hi Caroline, It's been alsmost 6 months since my surgery and I've only just really started to notice how much better I am. It's a very slow process. At my 3 months post op check my neurosurgeon could tell I was upset as I was still feeling really bad. He told me the recovery time for the op is about 2.5 years! I tried going back to work 3-4 weeks after surgery and that was not a good thing to do. Luckily for me my employer let me work part time and I have only just 3 weeks ago returned to 40 hours a week. I still don't feel like a "normal" person but I don't think I ever will. I sympathise with you when so say you're missing out on your son's life. I am a single mother to a 12 year old and for the last couple of years it feels like the roles have been reversed as he's been like a parent to me, looking after me all the time. Anyway, don't lose hope and take it day by day. My advice to you is to make sure you rest alot and don't do anything strenuous.
Like Angie, I am coming up on my 6 month anniversary and I have just started to have hope of a normal life within the past couple of weeks. Up until month 5, life was hell, and I expected to feel better much sooner, too. It's a long road for us. Just 2 months ago, I did NOT see how my life could get any better, but today, nearing 6 months, not only can I walk better, but I do yard work, exercise occasionally, have been out dancing several times and am starting to enjoy my life and love being me again! No one told me it could take months to get better, so I almost gave up thinking that was the best it was going to be for my life (and that was hard to deal with emotionally). But now I am smiling, because I have so much hope of living the life I had lived before Chiari thought it was going to take over! I am winning and I pray you win too! :) Hang in there!
Thanks so much for yer replys as i now feel im not alone. I saw my surgeon tuesday as i felt so bad. He was really nice nd burtally honest which i was happy about. He told me i need a cine mri as my fluid flow mite be blocked and if so more surgery. He also said that becoz of my syrinx my hand musles are starten to waste away which is scary im only 23. If the fluid isnt blocked theres nothing eles they can do for me and he cant promise ill ever get better which is horrible. He said he cud tell me id be fine in a week but he'd be lien. Hw was the nicest honest doc ive ever met and i feel comfortable im in hes care.
Thank yer again knowing im not alone or mad really helps as does knowing theres lite at the end of the dark tunnel.