I just typed a long post, and it disappeared…so I am now editing the non-existant first one.
Basically, I am doing wonderful since surgery regarding my Chiari related symptoms: no more numb and tingly hands, headaches, dizziness, slurred speech, unsteadiness, or chronic fatigue. I have posted about this other issue, but as I become increasingly frustrated, scared, and at my wit’s end, I thought I would post again.
I am still dealing, 4.5 weeks post op, with the nerve issues in my scalp. They have not let up. I deal with a combination of constant pain, numbness, and electrical shocks 24/7 which cover about a quarter or third of my entire head…all the area to the left of my incision. I have NO issues to the right.
My doc has offered Neurontin, which I am only taking out of complete desperation. But, really??? a med that is known for causing fatigue and dizziness??? Didn’t I just have this surgery to combat that? It is helping a tad, but that is all. I have been met with a complete refusal to prescribe any more pain meds.
I am now trying acupuncture, with a positive outlook and hope that it will lower these sensations from a screaming 8 to even a tolerable 5.
I have been told this is all “normal.” OMG. I have yet to read about this on this board to this degree. Can anyone throw me a bone, a tid-bit, some hope, some medical advice, some alternative treatments? I really am not a cry baby…but this is just so flipping awful and consumes me constantly. I am tired of feeling like a cowboy is chasing me with his branding iron or that my head is constantly licking a 9V battery…
I look forward to your replies.