I am really upset as I have been told at the beginning of July that I would have my surgery done within four weeks. I have dutifully waited for phone calls & waited for phone calls & told my boss I need time off & the approximate date.
Well, I called tonight & asked the hospital & the kind receptionist read out that they were waiting for a report from my Endocrinologist to say it was ok to operate on me. He has told me three weeks ago that it was fine. I usually push my drs for a print up & then I give out copies to all the other health professionals, but I slipped up this time & I have been waiting unnecessarily. She told me that they wouldn't look for a date for me until the end of August & my life has been on hold since early July!!!
I am feeling bad about this! (I am so grateful for everything else in my life, but this is annoying!)
I'm with Beeba... The sqeeky wheel gets the grease. Get sqeeking and tel them you need that report ASAP. You can also call the surgeons office and ask them to call your endo. They definitely listen to each other and maybe a nudge from one doctor to another will help. If not I would absolutely try Beeba's method of hanging around until they sign off on the surgery. Make sure the doctor is there the day you go. Good luck.
I am out with my violent vomiting for a couple of days - but, when I get up again I will be coming out swinging!
I managed a pitiful voiced call to the Endocrinologist's rooms yesterday & the receptionist is going to send me out the latest copy - I must have sounded horrible!
I am to be married in October - so, I would prefer surgery sooner, rather than later.
More frustration! I called the ns rooms & asked about a date. They were so good & have called the bookings coordinator. ...
Well, did I get a nasty attitude my way! The booking s coordinator opened the conversation with - "well YOU have got your response! ".
Seems I only wanted my calls & messaged returned. My better half is beside himself & my illness is excruciating (at times), but the booking coordinator thought I wanted a response. Maybe I should bow (oh, but I can't - i get a headache when I do!).
I got it all out there....thanks for listening. We have to be strong just to deal with the system!
I am sorry this has happened to you. I know you are a strong woman but at times even the strongest person has their limits. We shouldn't have to raise hades just to get a correct response or proper treatment or treated like a regular non rare disorder patient. That makes our heads hurt worse. I pray this never comes true but one day a Chiarian will really loose it and when they do I will be first in line to explain to everyone why.
I will never understand why medical professionals treat people in pain so poorly. I am a good person and sometimes it takes everything in me (and fear of karma) not to want to wish them to feel what we go through for just one (or ten) day. Maybe they get jaded because they hear and see so many people at some of the worst times in their lives but if you cant be compassionate and helpfull do something else.
I am sorry you are going through so much but just keep remembering that you deserve to feel better and you deserve to get help. We are here for you. Sending you prayers hugs and blessings. Wendy
Sonj said:
More frustration! I called the ns rooms & asked about a date. They were so good & have called the bookings coordinator. ...
Well, did I get a nasty attitude my way! The booking s coordinator opened the conversation with - "well YOU have got your response! ".
Seems I only wanted my calls & messaged returned. My better half is beside himself & my illness is excruciating (at times), but the booking coordinator thought I wanted a response. Maybe I should bow (oh, but I can't - i get a headache when I do!).
I got it all out there....thanks for listening. We have to be strong just to deal with the system!
I called again today.... Monday I take up a place in the surgical bookings office. They refuse to LISTEN to me and tell me to be quiet while they tell me their things (more excuses). These people are able to work, they can go to work (unlike me) & they are telling me to listen to them, talking over me, missing promised return calls, and refusing to give me even a guesstimate of a date. We have just cancelled our wedding which was in October. If i had a date, I dont mind when, I could make plans around my life. For 7.5 weeks I have waited.
Thank you all for the encouragement and support. I have finally got a date. I am listed for 17/9/13. Have searched the discussions for suggestions before surgery. Great reading.