I am in a kinda research mode/mood. If any of you wonderful people know of treatment, suffer from (properly diagnosed - sometimes we just blame everything on poor ole CM). Anyhow as the title suggests I am researching Vagus Nerve damage and symptomology. Some of the symptoms run exactly what we suffer from CM but I want to take it a small step (OK LARGE STEP) farther. We believe that all of our NS's and NL's all our honest and take the time to listen let alone tell us everything wrong. There is some sarcasm in that last statement.
Anyhow wondering especially if you are in need / have had a second (or more) surgery or a failed first surgery that if there is a possibility that during the procedure/surgery the vagus (10th Cranial) nerve was damaged. OR if the nerve can be pinched (like Sciatica).
I have not found that many sites regarding any correlation to Vagus Nerve damage and CM/SM but I am still looking. Any input would be great.
Here are some of the sites I found at this time, if I find more I will post them in replies.
I have all those plus a left leaning uvula that was discovered in 2009. I actually lost urine control. None of the NS have mentioned the Vagus nerve . I will have to read about it more . thanks for the links.
I also had a Cranial Nerve Disorder & had to have Microvascular Decompression Surgery pre CM dx.
Trust me if you have a damaged Cranial Nerve it can affect you in ways you never thought possible.I had Geniculate Neuralgia, but there is also Trigeminal Neuralgia & Glossopharyngeal Neuralgia and others that are more common Cranial Nerve Disorders and very painful and difficult to diagnose.
This is interesting yo me as my daughter was having fainting spells (pure CM1 DX). I was told it was simple vaso vagal response and to up her salt and fluid intake. which didn't seem to help, in fact her headaches worsened. I insisted on MRI and after a Dr saw the 7mm herniation on the rad report he denied she had Chiari. I got the report and it said another scan should be done to confirm CM1.
She sometimes still has vagus responses but manages it better now. Last Dr. Said same scan showed 9mm. Her symptoms have been up and down. i understand myself how that goes.
Does this nerve seem to have any relation to optic issues? Her last eye exam said her optic discs were elevated at the sinus side. I'm wondering if she's got pressure building... Could this damage or be linked to the vagus nerve?
Pebbles,\\there are other cranial nerves that effect the eyes. I believe they are cranial nerves 1-6 but a quick google search can set you up with the information quickly. pebbles said:
This is interesting yo me as my daughter was having fainting spells (pure CM1 DX). I was told it was simple vaso vagal response and to up her salt and fluid intake. which didn't seem to help, in fact her headaches worsened. I insisted on MRI and after a Dr saw the 7mm herniation on the rad report he denied she had Chiari. I got the report and it said another scan should be done to confirm CM1.
She sometimes still has vagus responses but manages it better now. Last Dr. Said same scan showed 9mm. Her symptoms have been up and down. i understand myself how that goes.
Does this nerve seem to have any relation to optic issues? Her last eye exam said her optic discs were elevated at the sinus side. I'm wondering if she's got pressure building... Could this damage or be linked to the vagus nerve?