So apparently, since the MRI at the Mayo clinic 2 years ago that showed the CM it has mysteriously disappeared... my doctor's office called me to tell me that my "x-ray" (which is apparently code for MRI) was normal. I somehow doubt that that's true given that my symptoms still exist and that the Mayo clinic was the one who caught it to begin with...well that and I don't think my body is cool enough to magically remove and reform bone.
I was already half dreading my NL appointment next week for fear of having to convince them that it was worth looking into/being referred to a NS, but now I get to convince them that it even exists! It's extra bad because the majority of my symptoms are still pretty episodic so there's a fairly good chance that I could appear/test totally fine when I'm there (I had planned on doing everything i know is a trigger to cause a flair so they would believe me until I realized I had to drive myself)The little shred of confidence that i had that I had finally found an answer has disappeared. Which I know is silly, but I've been down this road one too many times...