I was wondering if anyone had any of these weird symptoms and anything to make them go away
Twitching/spasms
Sleep paralysis - night sweats
Trouble breathing
Memory and loss for words
Dyslexia
Color blindness
Cold arm warm arm
Leg weakness (baby deer legs)
Left sided weakness
Hand problems (pencil)
Can’t lift arms (hair, guitar)
Ringing ears
Back/shoulder / neck pain cannot wear strap bras
Numbness (hips hands)
Rashes (chest legs arms look like hives. Happen randomly but mostly in shower)
Sensitivity to light sound smell
Raynauns
Dizzy
Pain above left ear - very sharp shooting
I am having all these symptoms, I’m not getting any better, but no one wants to operate
Any help is welcome
I forgot the one I mainly did this for. I feel like I’m underwater like really far away. Not necessarily an out of body thing but like I’m very far back from what’s going on. It takes me a long time to process and respond. My eyes are blurry and can’t focus, but I can still read words. It’s sooooooo annoying! I feel very drugged like I took a niquil and stayed awake
I do this all the time and it is the scariest thing. I haven't found a doctor to actually diagnose me yet, still in that battle. They always ask me if I have taken any drugs, kid you not. NO but that is how I feel!
Abbey said:
I forgot the one I mainly did this for. I feel like I'm underwater like really far away. Not necessarily an out of body thing but like I'm very far back from what's going on. It takes me a long time to process and respond. My eyes are blurry and can't focus, but I can still read words. It's sooooooo annoying! I feel very drugged like I took a niquil and stayed awake
I do this all the time and it is the scariest thing. I haven’t found a doctor to actually diagnose me yet, still in that battle. They always ask me if I have taken any drugs, kid you not. NO but that is how I feel!
Abbey said:
I forgot the one I mainly did this for. I feel like I’m underwater like really far away. Not necessarily an out of body thing but like I’m very far back from what’s going on. It takes me a long time to process and respond. My eyes are blurry and can’t focus, but I can still read words. It’s sooooooo annoying! I feel very drugged like I took a niquil and stayed awake
I was just diagnosed with Chiari 1 with a 7 mm herniation, spinal stenosis and degernative discs in my C4-C7 vertebrae and herniated disc in my lower back (L5?) seeing a Neurosurgeon for the 1st time on Monday and am very nervous about it. I actually do not want to have surgery if I can help it. But, I don't know if it can be helped. I am going to acupuncture 2-3 times a week and have just had a bilateral occipital nerve block this past Wednesday. They are looking to see if the headaches are possibly caused by Occipital Neuralgia.
What have they been doing to help your symptoms? You can send me a message anytime. I'm sorry to hear that you are going through such a hard time!! Good luck! And keep fighting!!
I have almost all of those symptoms the biggest hurdle for me to get a diagnosis was the fact that my “headaches” presented as inner ear pain. I struggled between several MDs, 5 ear nose and throat docs, and 3 audiologists before I saw a neurologist that ordered an MRI for me.
If you are having a problem finding a neurosurgeon to operate, don’t give up! There are still severel surgeons out there that aren’t very well versed in the decompression surgery. This may be the time to start shopping for other doctors in bigger cities who have the experience.
I myself live in Alaska, and I am in CT right now with my family to get my care. I am going to be treated at Yale. Good places to look are the Mayo Clinic, Cleveland Clinic, NYU, and John’s Hopkins.
the biggest hurdle for me to get a diagnosis was the fact that my “headaches” presented as inner ear pain. I struggled between several MDs, 5 ear nose and throat docs, and 3 audiologists before I saw a neurologist that ordered an MRI for me.