Hi all,
As most of you here, I am a longtime sufferer of chiari malformation. Common symptoms such as fatigue, awful headaches, nausea, dizziness, numbness, etc..... as we all know the quality of life suffers too.
I have family and friends support but I have found more and more that unless you have this condition then you cannot honestly understand what it is like to live with. Trust me, I am not wearing this condition as a badge of honor. LMAO. Rather, I am just having a hard time making it through each day.
I was wondering if anyone knew of support groups in Connecticut, New York, or Mass?
I sure could use face to face time with other people suffering from this. I hope someone knows of some good groups
Thank you all for any feedback!!
Shane :)