Its me again

Hey all yeah its me again looking for some more help sorry. I was wondering if anyone can help find sum information on support groups close to us. I have tried my daughters pcp, neurologist office, health department an hospital. Believe it or not no one knows NOTHING. One of the neurologist offices i called had me explain chiari to them. I was like really u work for a neurologist wow. But im not having any luck an im getting very frustrated. I am willing to travel a little bit but its like my daughter is the only one in new hampshire that has chiari which i know is NOT true. Any help is very much appreciated thank u an god bless. If anyone out there lives in new hampshire please please please message me thank u again