I have Chiari type 1, i had Foramen Magnum Decompression surgery 5 years ago this september and to be honest i still have so much to ask. I still have symptoms and at times i find it incredibly difficult to explain to other people how i feel, so i suppose really im just looking for a bit of support from people that understand.
For those that have had the operation how are your symptoms now? and for those that havent please ask me what every you need to.
I ha sugery about a year and a half ago. I have most of the symptoms I had prior to sugery which is sometimes hard to deal with. I can still not drive or work due to risk of falling and fainting and balance issues among others.
Hello, my names Ronnie, i know what you mean... I just found out that i have CM1 in April of this year, with in 2 weeks of finding out i was already having surgery, everything happened so fast it was "very overwhelming" ... i had surgery the 2nd of May, then again the 21st of May to fix a CFS leak in the patch they put in... I'm having headaches, pain in my arms and legs, spasms everywhere, muscle cramps and overall i just feel like crap lol I've had many symptoms for years but was miss diagnosed... As of right now i don't feel any better since having the decompression surgery's, i actually feel worse then what i did before, my symptoms are more frequent now then ever before.. My NS says every thing looks good, but i don't feel good still... My doctor says everyone who has this heals differently, that it just takes time... I know its only been a few months since my surgery but it feel like Chiari is running my life..i haven't been able to work in three months and things are getting tight...