I was thinking, soul searching and thought I would start this discussion and new folks who have not had surgery and those who are , as I call, 'fresh post-ops' can get my experience and others hopefully will chime in and give theirs.
Here goes..try to keep it short...I am 49 now...had decompression Aug 08.
My Sx's, looking back now..came on gradually...took some Sx's as just Lori being Lori..clumsy.....tripping over my own two feet.
Always had history of H/A's but they were thought to be migraine in nature...then they changed..where the pain began at the base of neck up to the top of head and eyes were so painful.
Then started getting this crazy , rapid heart rate..out of nowhere...sitting there, not stressed out and BOOM.....heart was beating out of my chest....at times this happened while sleeping and woke me..scared me 1/2 to death...but since I am high strung by nature...shrugged it off.
I was always, tripping on my 2 ft. as i said earlier..but what sent me to the doc was I had drop foot..I was dragging my left leg...
My spelling went to heck in a hand basket...I am not kidding..I was still working at this time and I swear my co-workers must have thought I was a complete idiot.
Word finding became a problem...knew what I wanted to say but still said the wrong word.
Hands tingled and cramped up..feet the same. Had to quit my job...I was (what a fancy title for a pion!!) a Donor Specialist...I worked for the Blood Center ..took donors med histories, vitals, ect..then took a 16 gauge needle and grabbed a pint of blood!!! Well...16 gauge needles are huge...it was clear to me it was unsafe for the donors..haven't worked since.
Here is a real weird thing that NO DOCTOR can explain.....before Dx'd and Tx'd...I swear..i would get bronchotis or pnemonea(sp) at LEAST x4 yrly...I should have taken out stock in Levoquin!!!
Of course my PCP said I got it so much b/c i smoke ciggs...makes sense...smoking is stupid..but i confess i still smoke...anyway...NOT ONCE....since my surgery have I had as much as a chest cold...never have been on Levoquin since..(anti biotic)
So much for a short post...sorry....Now the good news!!!
It took many mths for me to see/feel real results...keep in mind that i am the INSTANT GRATIFICATION TYPE...I WANT IT NOW!!!!!!!!!!!!!!!
But time takes time....there was positive improvement.....no longer had drop foot, neck pain was better, mood was better, feet pain took awhile to feel good results but my guess is that after about 9mth maybe even more...the neuro pain in both feet got and is still at least 50% better..some days they are better than the 50% and others worse..ya go with the flow...H/A changed in nature.....more pressure than pain....nausea got better..I have always had an underlining nausea problem....that took over 1 yr to get better.
For me, nothing positive happened immediately...now some folks get instant relief in some areas..for me...I had to be patient....not in my personality...but ya know, throughout this journey , my patience has improved 10 fold!!
I will post more positive results as they come to me....it is funny, for me anyway, I tend to forget where I came from!!! I would rock and cry EVERY night after the kids went to bed.....that is no longer the case...Hey, we all have bad Chiari days...but we have each other too!!
Again, sorry this is sooooooooo long!!!!!