So I absolutely have to share something with ya'll... I am sure everyone here knew yesterday was Rare Disorder Day... Wed I had told everyone in my office about it and was asking everyone to wear purple. I had to take yesterday off due to 2 different dr appointments, when i came in this morning the ladies told me that everyone wore purple yesterday for ME. I thought it was so thoughtful and for me it was a big step in the right direction for CHIARI AWARENESS!!!
I hope everyone is doing good.