I keep having burning and itching veins in my fingers and hands sometimes my legs then they burst and I end up with a horrible bruise! Anyone else ever have this happen? What is this?
I do, in my fingers and hands. I don’t know what it’s about though. Vascular EDS?
I haven’t been diagnosed with EDS yet but I’m thinking I do! To many symptoms of it. Very shiny skin I scar easy as well as bruising for no reason MVP and on and on!
Hi Wendy(:
jcdmar is right. It sounds exactly like Vascular EDS. When you have blood drawn, is it hard for them to get the needle in the vein? Has anyone ever told you that your veins roll? Does it take a long time for cuts/scrapes/ wounds/ect to heal? Are you flexible? Are you double jointed in anyway? I have Vascular EDS and I can answer all of those questions with yes. Even if you answer only one of them with yes, it's possible you have it. It really stinks because there is no blood test to diagnose EDS as of now. I hope you get the answers you deserve(:
Sincerely,
Macie
Hi Macie! I scar very easily, I can touch the floor flat handed with my legs straight, bruise easy for no reason, can touch both hands behind my back one over one shoulder and the other from behind and up my back to touch. I also have MItral Valve Prolapse. Always have snapping and popping of my joints. Had both knees Athroscoped for repair of torn ligaments and cartilage. Was told I have Bursitis and Fibromyalgia! Now I have what that call a Back Mouse Cyst…four of them in my back! SVT, PVC’s, OsteoArthritis, acquired scoliosis, IBS, Asthma, PVC’s, Reynauds Syndrome, Endometriosis…etc!! Sorry for the long list. U get the idea though. Seems like every time I go to the docs it’s something else!
Oh, I also had Thyroid cancer many yrs ago!
Oh man, you've got it rough. I'm so sorry you have been diagnosed with so many things! it does sound like you have EDS though. The fact that you can touch the floor flat handed and touch your hands behind your back are tell-tale signs. Do your joints ache a lot? Because if they do, it probably means the tissues between the joints are thin, and thinning quickly.(another sign of EDS). Mine ache mostly in my shoulders and upper back. I'm 15 but I feel like I'm 40! haha. both my sister(10yrs) and I have it, but it effects us differently. She also bruises easily but I don't. I'm extremely flexible, but she's not. When/if you ask your doctor/NS to test you, what they'll do is make you do a series of things to see if you're flexible or not and ask you about your veins/ligaments/tendons/stretchy skin. Each thing you have, counts as a point. You have to have a certain amount of points to 'have' EDS. There is a woman on YouTube who knows a lot about EDS and has studied it well. If you want, you can look her up. Her name is Doctor Diana. Just type Doctor Diana EDS in the search bar on YouTube and her videos will come up.(:
-Macie.
Yes , I do and was also curious about it...
I also have a hard time healing, a scrape, scratch cut and bruise last forever??
Deb
OH MY GOODNESS ,
I just read other post and I also have the symptoms you put up for EDS..
I have a horrible time with IV's and Blood draws.. To the point of tears at times... I have joint's that slide out easy and have been told I'm hyper flexible and also I was told when I was younger I had super stretchy skin? That was when I was pregnant and Had 5 kids who were all over 9 lbs and not 1 stretch mark ! Is it possible to have EDS before Chiari symptom's ?
Would I go to same Surgeon who did my decompression to test for EDS ?
Thank you for all the great info you all share!
Debbie
All the time - Vascular EDS
Thank Uou for all the informative replies. I’m still searching for a Neurologist and NS as well as a better PCP who will do the necessary tests and so forth! Haven’t found one yet! As of right now I only have my PCP whom in my opinion is an idiot who doesn’t care or listen! So, I’m pretty much on my own!???
If you're open to it, I recommend the Neurologists and Neuro Surgeons in The Chiari Institute of Long Island New York. They are wonderful there and make sure they make the best decisions for your health. (:
Wendy Pike said:
Thank Uou for all the informative replies. I'm still searching for a Neurologist and NS as well as a better PCP who will do the necessary tests and so forth! Haven't found one yet! As of right now I only have my PCP whom in my opinion is an idiot who doesn't care or listen! So, I'm pretty much on my own!???