Throwing something strange out for some peer review. I know we have our doctors who we prefer whether they are backed by WACMA, CSF, ASAP, etc or another CM/SM organization or center but I am thinking about (since having nasty flares and some significant worsening of some symptoms as well as some new ones) about going to a local NS who is a member of the AANS (American Association of Neurological Surgeons), who has some experience with CM but it is not one of his primary treatments as the doc who were mentioned above.
If you’re not happy with the path then change it. It can never hurt to hear what someone else has to say
I say if you are not feeling optimal then do what it takes to get to feeling better. I know there are bound to be really good doctors out there who are not "specialists". Try him and see what you think. If you think about it even the specialists started out with one chiari patient!
BTW...good to see you back on the boards! Sorry you are having troubles. I have been wondering about how you were doing and how the new baby is! Prayers to you!