Okay, here goes…
In Oct. of 2010, I was hospitalized for what they thought was viral meningitis. I’ve never gotten a straight answer as to how I got viral meningitis, other than I probably took too many different antibiotics to deal with a recurring ear ache. During an MRI, they found a Chiari 1 malformation and mastoiditis. I was told I’d had the Chiari since birth and it was nothing to worry too much about. I was given enough care to survive, but if it were up to my local hospital, I’d still be on narcotics. I’ve shied away from doctors since, because I live in a very real area with limited competence.
Fast forward to Dec 2016… I have a hard time explaining it, but all of a sudden, my arms started going numb while I slept. I’ve tried every pillow, bed and anything else I can come up with, to no avail. The last year has been the worst, with added headaches and another ear ache I can’t seem to shake. I’m realizing I need help, but am terrified to go back to the doctor. However, I did find a doctor a little over 300 miles away that has some experience with Chiari. I prefer NDs to MD’s, but my regular practitioner doesn’t even live in my state and only comes every few months. She’s awesome, but she’s also limited by time and inexperience with my type of condition. I guess I’d like to hear your thoughts- if you’d take the chance and financial leap to go see this doctor? I will refuse any kind of surgery until it’s life or death…