Ok, so I went to the NS, and he said I do have a 15 mm herniation, but as far as he can see there is no blockage, and my spine has no kinks in the neck, and only 1 side has fallen in to the opening. Now my question is, without the kinks, or the blockage, can you still have symptoms of Chiari? the reason I ask, is because I have lots of symptoms, but as I stated before, I also have superior canal dehiscence which give a lot of the same symptoms as Chiari..but I also have symptoms that are just Chiari and not SCD related. If anyone can answer this I would greatly appreciate it!!
Ty...I do have a protrusion, just the one side..not sure how that happens..but he said because there is no spinal fluid blockage or kinks in the spinal cord where it's protruding, I shouldn't be having any symptoms.
Yes he did..he said I have had Chiari all my life, I shouldn't be having symptoms now..we found it accidently..I said no we didn't, I wasn't fine and healthy and had a test for something else and then found out I had this, I was sick and trying to find out what was wrong..he said because only the one side went thru the opening, I don't have any problems
Just throwing this out there...# 1 You know you have a 155 Chiari Malformation with no kinks, blockage, ect.....BUT...you also have another condition..SCD..Superior Canal Dehiscence.
As far as # 2 goes..SCD...would it be logical to make an appointment with a surgical spine specialist?? I personally, have this thing about 'leaving no stone unturned'....
NS's may not deal with SCD that much..but a spinal specialist , very well may....just a thought....good luck!
SCD is in the ear..its holes in the temporal bone over the ear..I have been seeing an ENT for the past 5 years for that..I am not a candidate for surgery. While seeing the ENT I kept telling him of these symptoms that I am having that I know are not related to SCD and he couldn't give me answers.just the one eyebrow lift like I have completely lost my mind. When I was in Baton Rouge for testing for SCD, the ear dr there told me that I was having abnormal brain responses during the testing, which isn't related to SCD. I had the laying down MRI almost 2 years ago, and no other testing for Chiari. I have so many symptoms of Chiari..once diagnosed with Chiari, I looked it up on the internet, and found that the symptoms I have been telling my ENT are listed as Chiari symptoms. I figured more testing should have been done, not just waved off and left like this.