Headaches of all kinds...
the most reaccuring one is when I wake up in the morning. It's like a band squeezing my head with most of the pressure in the back of my skull. This pain is severe and annoying and intensified when I bend forward. Sometimes coffee, a bowel movement, excedrin and hot shower will put it to ease, but most times it continues to get worse as the day goes on.
Migraines with and without aura. The aura's I've had were deja vu, firework type explosions in my vision, seeing lightning or flashing lights, and smelling burnt toast.
And the one that's always there no matter what, just a plain old headache, its there, but it's so minor compared to the other 2 these are the relieving type of headaches. It's usually behind my eyes and at my temples.
The migraines leave me an absolute wreck, even when there gone I'm left with the neurological symptoms for hours or days. Vertigo, nausea, vomiting, tremors in hands and face, visual disturbances, vision loss, stiff neck, confusion, tongue tied and FATIGUE.
tinnitus, most disturbing in quiet places. Break through hearing loss, usually in one ear that is replaced with a high pitch ringing.
Constant sore throat and swollen lymph nodes in neck, armpits and collar bone.
TMJ with clicking and lock jaw when opening the mouth to wide.
Stiff neck & shoulders with muscle spasms.
Electrical shocks down the spine that spread tingling sensations from the center of my body out to my limbs (this is not an unpleasant feeling it's like the chills.) This usually occurs in extreme temperatures, mostly hot and bending my head backwards.
Acid reflux so bad it makes my ears burn. Dysphagia with food impaction, especially with starchy dry food. Saw a gastro and had an endoscopy, she found several ulcer's and serious "candida" overgrowth. When she called with the biopsy results she said this has got to be the worse eosinophilic inflammation she has ever seen. There was no candida present purely inflammation due to eosinophilic esophagitis.
Burning, numbness and tingling in my left shoulder blade with shooting pain radiating down that arm.
Lower back pain that is a constant dull achy feeling.
Hip pain, especially on left side that causes me to limp.
Knee pain on both sides. Knock knees, partial subluxations of both knees.
Mitral valve prolapse, pvc's, pac's, heart murmur, tachycardia and palpitations. Last echo showed a torn cardiac muscle.
Collapsed lower left lung base.
Spinal stenosis in lumbar spine, foramen stenosis in cervical spine
Scoliosis, block thoracic vertebrae, extra lumbar vertebrae.
throughout my life I have dislocated every finger and knuckle in my hands multiple times, mostly from playing too rough.
I have arthritis in my hands, toes, pelvis and small sections of my spine.
Random stabbing pains in my rib cage that knocks the wind out of me and causes me to drop, it only last seconds and I cant take deep breaths for a few minutes after.
Miscarriage x2, both due to fetal genetic abnormalities.
"Irritable bowel syndrome" constant diarrhea with sporadic bouts of inability to move bowels causing bowel obstructions. 4 bouts of severe rectal bleeding that subsided on there own.
Dizziness upon standing from squatting, sitting or laying position, with tachycardia. Several times I have loss consciousness from this.
So this is my long list and I think I got everything. I'm only 24 and I feel like a 80 year old. It scares me so much to think that every time I go to the doctor they are going to find something new and it scares me even more that no one knows why my body is failing me. I've pretty much gave up hope on ever having a normal life and a beautiful family, especially if there's a chance my child will have the same issues as me.
According to my labs I am healthier than ever, all my vitamin deficiencies are under control, I seem to have my iron deficiency under control. I exercise as often as I can, I lost weight, I avoid stress, I take my 20 different vitamins and try to surround myself in things that make me happy and I generally am easily distracted from staying depressed too long.
I have my follow up appointment with the Neurologist In November I don't know how I'm going to survive the anxiety of waiting so long to see if I'm a candidate for surgery. At this point I would let them cut my leg off if they said it was going to cure me.
Below are my old images from 2013 I can't figure out how to upload the newer ones yet
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