I was 15 when I had my first spine decompression surgery. They removed a 2 and hald held quart tumor from my spine. I thought iI was good after that until college hit. I started again with leg weakness and urinary problems. I finally had a MRI in 2005 when I passed out. They found Chiari on my films but never told me. I have had three natural births and epidural. I was seeing a chiripractor for four years. My symptoms got worse with headaches and back pain. In 2011 iI passed out again had a brain MrMRI. That is when they told me my Chiari got worse. I was upset because I didn’t even know I had it in 2005. The Dr told me that physicians think its an accidental finding. I was frustrated. I have been in pain for 8 years and I have put my family and husband through a lot. I am now going to Cleveland clinic. I do have a twin sister that was born with a opening in her spine. The drs won’t even do an MRI on her. She is also having the same symptoms which just came on this past year. I wish more medical personal was educated on this
Hi…
So sorry that you have been through so much and not even told about the CM…when is your appointment at the Cleveland Clinic?
Please keep us posted.
Best of luck to you.
I go next Monday. I went to Pittsburgh and they wanted to do surgery. i have 3 kids under the age of 3. just a little bit worried about them. so i was hoping cleveland can do some type of technique through the nose. i know its new but i am willing to try it. i cant imagine not holding my kids. i hear horror stories about surgery and i hear great things about it. just weighing my options
Chiari 2 often occurs with spina bifida. I would encourage your sister to push for testing as well. I was under impression that the nasal procedure was for issues with the odontoid. I will have to do some more research.