I have serious trouble with keeping up with my friends. I've known my best friend for over two years now, and he is great in alot of ways. But he has trouble understanding why I cant do certain things. I was just wondering what to do when No one understands. How do I convince him that what I deal with is very serious, and I cant do things most teenagers can. I am 15, I am assuming I failed to menion that. It's a very frustrating time in my life. I break down atleast onces a day. I live in this constant spinning world of pain and I just cant make people understand. I love my bestfriend almost as much as I love my family, but its getting to the "very hurtfull" point. How Do I make him understand? I am not looking for an easy answer. Just some Usefull advice or how I should deal with this.
Hannah,
I would get him to either join this group or come in and read some posts. It is difficult for our friends and even some family members to understand. Many people even think that when we have decompression surgery we should be healed. That is absolutely not true. I have lost friends because I could not do the things I used to do. I have had the same best friend since Kindergarten, so we have been friends for 39 years. She totally understands & is very supportive. I am sure your BF will be also. Just educate him. Sometimes guys just need a nudge. He might also be afraid for you & your health. Just set a laptop in front of him & tell him to read...
Tracy Z.
Hi There...
Tracy gave great input...
I wanted to add that there is a book called.."Contents Under Pressure" by Ray D'Alonzo...It is an easy read and very, very informative..this guys spills his guts out with his struggles..maybe you could get it for him to read.
Remember...you have us here to listen and help you in any way we can. Chiari can be such a lonely condition to have, I have problems making plans..not knowing how I will be feeling, ya know? And I am a lot older than you...so I can only imagine how hard this is on you.
You sound like a very mature and smart person..remember that when you are down!
Peace,
Lori
I think I will show him this website:) I think alot of it is that he wants for me to be normal so he acts sometimes as if nothing is wrong.:/ On the bright side, he cares. Its inspiring to hear that you have had your best friend for so long!! Kind of gives me a new hope. thank you.!!
TracyZ said:
Hannah,
I would get him to either join this group or come in and read some posts. It is difficult for our friends and even some family members to understand. Many people even think that when we have decompression surgery we should be healed. That is absolutely not true. I have lost friends because I could not do the things I used to do. I have had the same best friend since Kindergarten, so we have been friends for 39 years. She totally understands & is very supportive. I am sure your BF will be also. Just educate him. Sometimes guys just need a nudge. He might also be afraid for you & your health. Just set a laptop in front of him & tell him to read...
Tracy Z.
Lori,
Thank you:) I think I will read that book then maybe he will. The planning this is very hard:O
lori said:
Hi There...
Tracy gave great input...
I wanted to add that there is a book called.."Contents Under Pressure" by Ray D'Alonzo...It is an easy read and very, very informative..this guys spills his guts out with his struggles..maybe you could get it for him to read.
Remember...you have us here to listen and help you in any way we can. Chiari can be such a lonely condition to have, I have problems making plans..not knowing how I will be feeling, ya know? And I am a lot older than you...so I can only imagine how hard this is on you.
You sound like a very mature and smart person..remember that when you are down!
Peace,
Lori
I'm sorry you are going through this. I lost all (except one) of my friends before I even KNEW what this was... even though I was technically diagnosed 20 years ago. The only friend I still have (other than online) is the one that's known me for 22 years... since we were 14. I have social issues in addition to the Chiari stuff though, so I'm ok with the lack of friends. Definitely get your friend some Chiari information and suggest he join this group.
Hi..Just wanted to see how you are doing,,,thinking of you!
Lori
Teresa,
I will probably become more okay with just one friend as I get older. I just have those silly envy days where I wish I was the "group of friends" kind of girl. Some days it doesnt bother me now though.
Lori,
I am alright. Really feeling better after joining this group:) it is amazing to know how many people are just like me. Also, how many people care. Everyone I have talked to here has been very kind.!! If only the whole world had compassion tward one another rather than just the ones with similar struggles. (wouldnt that be nice) lol.
Thank you:)
hannah.
I did a booboo click.
uh oh...that just posted to the wrong page.
Thats what I get for having more than one tab open.
<blush>