I have a problem driving in a car. My constant headache severely increases when riding in a car
I only leave the house for doctor appointments. Does anyone have the same symptom?
How do you prevent the pain? I have CM1 with 6mm and syrinx at T-3.
I enjoy this site and the valuable information.
Hi hope24, I am really sorry to hear that. Have you talked to your doctor about it and see if they have any suggestions? Have you tried bringing a comfy pillow to help support your head? Hugs.
Hi, My name is Yvonne and yes I have this problem also but I don’t have a syrix. Also when driving I find it very hard to turn my neck. I’m looking into getting a neck brace off of ebay to help with the pain.
I had decompression surgery back in 2013 and I still experience dizziness and headache when riding in the car. If it’s a long ride, I’ll even get nauseas. I don’t know maybe assuming it can be all the moving cars, moving and stoping in the vehicle I’m in. Really not sure what this can be due to. I try not to get in a car unless I absolutely need to. Not a way to live but I try to cope with it as best as I can.
Try anti nausea med doctor gave me type cancer patients use it help a lot and a neck pillow plus lumbar pillow. It take forever to get going but well worth it
I'm 66 and was decompressed when I was 40. I have tried many, many things to relieve the pain in my neck and shoulders. If I'm driving more than a few mile(or riding) I use a neck support dog-bone pillow. I "adjusted" the stuffing to "fit" my short neck. Sometimes I wear a soft collar. From my experience of many years, I would say, "Do NOT expect all the problems to go away.". They won't. They will just get more manageable.
Try to anticipate those things that "set off" worse pain. I use the FLECTOR patch. That has proven most useful for me. Notice I said, "FOR ME". I cut a 1 inch strip from the 3in by 5in patch, and stick it across the back of my neck just below my hairline. I have to secure it with a little tape, cause the edges tend to roll.
I love gardening. Leaning over my flower beds to clip things for more than an hour at a time, "sets off" my neck/head/shoulder pain. So I have to LIMIT my gardening. Pooooooo. But necessary..... My husband hired a gal to help me.
Hi all,
I also battle in a car, driving, as a passenger etc. This problem we have is due to the friction on the herniated tonsil in the neck. The movement of the neck as we drive and the involuntary movement while we are passengers, especially around bends, on uneven roads and so on.
We all need to be on preventative migraine meds. I am on three different pills at night(Sibelium, Tripilene and Mirtazapine) to help prevent pain, as well as a pill to take during the day if I am head-achy. Together with this carry nausea pills on you. It does help a lot to stay on preventative medication.
Also go every two weeks for back, neck shoulder and head relaxing aromatic oils massaging.Combatting pain is an ongoing way of living. Don't gym, as this causes pain and nausea and is dangerous in our situation as it can cause permanent problems and damage.
All the best to all of you who read my reply.
Stay well.
Love
Flerrie
Hello, I get nausea and extra pain while driving. I use essential peppermint oil. I also have a cream my pain med doc had mixed for me. Nothing really works though. I have to lay on a big ice pack when I get home. Do any of you have brain slumping after your decompression. Mine was 3years ago. I meant with my ns next week to discuss a new surgery.
Your pain is not outside and is not a muscle pain. It has to do with nerve irritation, nerve pain relayed to the brain, brain pain due to the brain itself being irritated by friction.
You need pills that prevent pain to be relayed as pain to your brain. Preventative pills is the only thing that really works.
Kim Rivas said:
Hello, I get nausea and extra pain while driving. I use essential peppermint oil. I also have a cream my pain med doc had mixed for me. Nothing really works though. I have to lay on a big ice pack when I get home. Do any of you have brain slumping after your decompression. Mine was 3years ago. I meant with my ns next to discuss a new surgery.
Very helpful, Flerie. Can I ask what are the meds you are currently on and what nausea pill you use? It’s a little disappointing going to neurologist office for ‘help’ and leaving helpless. I’m making a switch and going to see a new one but just hope he’s finally going to be able to help me.
Hi AnaS and all of you,
All of these meds can simply prescribed by your Gp. My Neuro started me on Remeron. My Gp takes care of me between visits and controls any symptoms.
My treatment regime is as follows:
At night before bedtime: All of this is prevention of headaches - headache control
I take one of each of the three night time tabs every night:
Adco-Mirteron or Remeron 30mg
The rest was added by my Gp when we found I had progressed in headache and was just about always picking up migraine, and makes for very successful control:
Sibelium 10mg x 1 per night
Trepiline 25mg x 1 per night OR ELSE Myprocam 15mg x 1 per night
In addition I carry the following on me:
Tora-Dol 10mg for pain to be used if I develop signs of pain during the day. If I am over tired, do not sleep enough at night or sit working with my neck bent for too long I develop signs of pain starting, so then take Tora-Dol straight away and this immediately stops all signs of possible pain.
Aculoid for nausea when needed
Every Morning:
Lamictin 25 to support my balance. This helps very successfully to prevent me from falling
I recently started to battle with nerve ending irritation. Much like restless legs, but your whole body becomes so sensitive, busy, like a pain in nerve endings without the pain. The following was prescribed with great success.
Lyrica 150mg - 1 x night: 1 x morning.
At night when you go to bed, watch what your heart rate does when you lie on your pillow with your head. I found my heart started to race so badly I would jump up out of bead for fear, because of the added pressure to the back of the head was affecting the brain. I consequently was put on
Cardicor 2,5mg but any good Beta-blocker will do the trick.
Go to your GP. A person cannot go to the Neuro for every symptom we develop. They are too expensive and you also cannot wait so long to for symptom control. My Gp is very clued up on Chiari and knows exactly what I can expect and how to control it.
God bless
Flerrie
Thank you so much Flerrie for this information. At times I feel like throwing my hands up and surrendering to all the symptoms I feel. It’s incredibly frustrating at times, the doctors seem to think that because we look so ‘normal’ and ‘ok’ on the outside that they can question when we say how we are feeling on the inside. I will keep your message for reference and ask the dr when I am able to see him about this and if any are right for me. I was on Tora-Dol before surgery and after and the side effects left me unable to do anything, not sure the dosage I was on. So, I’ll try to go back to my hospital documents and check.
I appreciate your help!
God bless you too!
Hi everyone. I have not experienced severe head-ache yet. And I hope I wont. But my problem that really bothers me now is my stomach-ache. I also have no appetite. For 4 years after my surgery in 2011 everything went well. But now it seems all the symptoms prior to my surgery are now back.Does anyone experience stomach-ache?