I've seen a lot of stories on here about folks seeing a neurologist and being totally blown off and disregarded. My first neurologist appointment (ever) is Tuesday (4/3), and after reading all these stories, I have to be honest, I'm both scared and skeptical. And I'm curious: Has anyone here, even if it's just ONE of you, ever had a positive experience on a first visit with a neurologist? If you have, please share, I need happy stories. :)
Hi Queen_Vic!
In answer to your question, or maybe your plea...yes! I had a good experience! My Neuroligist first treated my migraines, (Topomax) ordered an MRI, since the ER doc had done the CT scan already... she diagnosed the Chiari (6mm) and referred me to the Neurosurgeon. She took me seriously every step of the way. I feel blessed. No pat on the head, and there, there's. Beginning to now, my husband and I have been blessed -we saw local doctors, and when it came time for surgery, we chose to have it done at Stanford with the blessing of the neurosurgeon we had been working with up until that point. I hope this encourages you on your journey, God bless!
Thank you SO much! It helps a lot.
Seabrookes said:
Hi Queen_Vic!
In answer to your question, or maybe your plea...yes! I had a good experience! My Neuroligist first treated my migraines, (Topomax) ordered an MRI, since the ER doc had done the CT scan already... she diagnosed the Chiari (6mm) and referred me to the Neurosurgeon. She took me seriously every step of the way. I feel blessed. No pat on the head, and there, there's. Beginning to now, my husband and I have been blessed -we saw local doctors, and when it came time for surgery, we chose to have it done at Stanford with the blessing of the neurosurgeon we had been working with up until that point. I hope this encourages you on your journey, God bless!
i am happy with my nl, he has been in our family for over 10 years also with my cousin who has ms
I am with you, scared of my NS apointment! I was relieved to have a dx after all these years then I started reading the stories about appointments with NS blowing CMers off. Even with all the horror stories I was told to find a Dr. who specializes in CM because it WILL make a difference!
You are not alone, it is so sad we have to be scared to get help! Stay strong!!
(((((hugs)))))
Thank you guys so much for the replies. My husband is coming with me to the appointment tomorrow, and he's helping me with the list of questions so we don't forget anything. I'm still a little scared, but these responses have helped a lot. :)
My first visit with a NL was very short- she said my Sx's were not typical migraine's so she ordered the MRI, a few days later i had the MRI, and just a few hours after the MRI i was able to read the radiologist report that was the first time i ever heard of Chiari- that was late on a friday afternoon and i could not reach the NL so I made an appt with the first NL that could squeeze me in on the following monday. That Doc was pretty great he concurred it was Chiari and I needed surgery and got me into a surgeon very quick! I had my decompression whiten a three weeks.
That is awesome he is going with you! It really helps to have 2 sets of ears! Mine turned out really good and I was nervous like you! Let us know how it goes!!
Queen_Vic said:
Thank you guys so much for the replies. My husband is coming with me to the appointment tomorrow, and he’s helping me with the list of questions so we don’t forget anything. I’m still a little scared, but these responses have helped a lot.
So the visit went really well today. Apparently, the CT they diagnosed me with also shows something interfering with the flow of CSF, as well as what really looks like Chiari, but the NL wants to do the MRI and confirm the diagnosis and get a better look at the flow of the CSF to get a better idea of treatment options. He wants that MRI this week, and he wants to see me again either Friday or Monday to discuss the results. Thank you all for all the support. :)
I’m glad to hear that your appointment went well:) Please keep us posted.
Hi, haven't found one neurologist yet who really understands and is educated enough on Chiari. HOWEVER, I just found an amazing Neurosurgeon who knows everything about Chiari. There are doctors out there who are very sensitive and compassionate about our disorder. Sometimes you have to go through the rough to get to the diamond!
Hope your appt went well.
Christine :)