Has anyone else had this problem?I have told my family and a few close friends whats going on,what I have,symptoms,pain ect.They know im having brain surgery tuesday.No one except my best friend seems to get it.When they see me they say oh you look much better.Or hey lets go to the flea market(2 hr drive).Or my mother trying to make me eat when im nausous.Or some stop calling or comming by.I think this is the worst part for me.I wanna scream Its not a F.....N hang nail im having brain surgery!!!! ugg whew got that off my chest!!! lol feel much better now lol any words of advice?
A lot of people don’t know how to cope with it. My brother didn’t know what to say to me because he knew nothing he said would fix me and make me well… my dad avoided me completely because everything he said upset me (he mostly told me I was useless and a money sucking leach.)
It's EXTREMELY Annoying!!!! I had my decompression surgery over 2 years ago & my entire family is completly Clueless.. I look fine besides having to close my left eye almost every other minute.. I have been told to think positive, or my favorite think happy thoughts & every thing will be fine.. Nothing else was working so i said what the heck , So i gave it a whirl they were wrong it doesn't make the constant pain go away, Imagine my surprise.. Luckly i have have a wonderful wife & a great relationship with my in laws who mostly get it..
Good luck on your surgery!!!
Thanks soooo much everyone.I feel much better now.Yesterday it just got to me.It was a painful day and I just wanted to sleep and save my energy for the trip to Stanford.All I could do was sleep and cry and evryone just wouldnt leave me alone.I do have a very selfish family but my friends understand and im grateful for that.My best friend saw me last week and i hadent brushed my hair for a few days she was like its been a painful week hasnt it? She saId when your hair isnt perfect all the time you gotta be sick!!!!!!! Now thats my bestie I have the best bestie in the world!!!! Thanks guys for the kind words,this group is truely a lifesaver!!!!xoxoxoxo
Dingaling, best luck on Tuesday. I hope you are able to relax into the process and rest, rest, rest. Please check in as you are feeling up to it so we know you’re ok. I understand what you are talking about with fam and friends…it’s a weird phenomenon. It can feel so lonely. We get, though. We know what you’re about to do and that makes you very brave.
Jenn
Prior to my surgery I had a coworker tell me she knew how I felt because she was going through a serious medical situation herself...fatty liver! She was embarking upon a strict diet. It was a least a little comic relief leading up to surgery.
Good luck today! Check in when you get a chance and let us know how you are doing! I hope you have a speedy recovery!