I have an appointment coming up with my NL and I want him to really understand what it is like to live with Chiari. I thought it might be a good idea for everyone, actually. If we can compile a wealth of personal experiences, symptoms etc, in one place, we can print these out and give them to out doctors. Maybe we can help our doctors understand.
Please post your diagnosis, age, whether you are now pre or post op, your symptoms etc. Please add any information that you feel is relevant. Thank you!