Dreading a Follow Up - Hi From Newbie

Hello!

I'm Jen--A newbie here on your site! Looks pretty cool here! I've been enjoying my Chiari vacation! I tend to ignore things as long as I possible can! It's how I roll!

I can no longer avoid, my family is really driving me nuts about making an appt. My husband really does not like my NL. We both agree he does not know anything about Chiari. He says it's all Migraines. I guess the biggest concern is he doesn't believe in the need for follow up MRI's after surgery. My decompression was Nov 09 and I remember he made room and I have the dura patch. I still have the C1 and C2.

I still have headaches in the back of my head. What I hate most is the eye pain and eye pressure. That has always concerned me the most. I just get sent to Ophthalmologist but I always test ok there. So guess my eyes are ok.

Question...Should I just get a new NL or my family was wanting me to check and see if I could get into this Dr. Heeftz?? As he is in Wisconsin not far from us and on my insurance. To have him check and make sure the surgery is still good. Who does that? NL or NS?

Also any runners on here? I am a runner and have not found many other persons with Chiari running. This is one of my main reasons for going in for check up! I have been getting headaches during my runs lately! Big bummer!

Cool site! I shall be seeing you around!

Thanks I'll check that out!!! I actually feel pretty lucky and blessed! I overall feel pretty good! Besides that annoying pain I get back there from time to time and the eye pressure I'm doing good! As I go knock on wood.....

Seriously I feel so blessed as I read a lot of folks still suffering from nightmare headaches and other issues I feel so lucky!

I just dread my appointments! I do have to go soon, I also have Cavernous Angioma which is completely different. That is in my frontal lobe. I had it removed in 06 but they didn't get it all. It grows back and causes small bleeds in the brain. Pain in the butt!

I'm going to check into this book! Thank you so much!!!

Jen

HI!!!

Welcome to the group...I can see that my buds Abby and Emmaline have already given you wonderful input..I really cannot add to that ..other than be sure , as was mentioned above , to see a NS..personally, I have had NO LUCK with any NL.

Keep us posted on whats going on....again...WELCOME!!!