My son has a cyst in brain which he a cp shunt for. Chiari has always been a possibility for him bc where the cyst is located. But ever since they placed this shunt he has had horrendous migraines. And now he has sleep sitting up. He cant even sleep at night without sleep meds and sitting straight up. He is only 19 months so he cant tell me what is going on. His doctors arent doing a thing about it.
Donna,
19 months old and in such pain? That breaks my heart. Can you find another doctor or take him to a pediatric ER? No adult should have to live like that nevermind a baby. It must be so hard on you. How are you doing? We are here for you. Please keep us updated on the precious little guy.
Wendy
VCU/MCV & St. Mary's has a pediatric ER. Where & who did your son's surgery? He shouldn't have to sleep sitting up. I am so sorry.
He is currently seeing Dr.L with neurology and Dr.Tye for his neurosurgeon. They did move his mri up to next Tuesday. Although they keep trying to tell me that his shunt couldn’t of caused all these issues. I. Knew chiair was a possibility bc of the size and location through research of my own and talking to others who have the same issue as my son.
Donna,
I know Dr Tye. he is very thorough. What can I do for you? I know the two best pediatric diagnosticians in the Central East Coast. I can call either of them at any time. I also believe your sons shunt set off his Chiari symptoms. Can they not remove the cyst & shunt & then re evaluate your sons Chiari symptoms? Do you have a good support system? It is important you stay healthy also. Just whatever you need ask & I will do anything I can for you. Anyone on this site will vouch for me. You might even know my family....i will message you my lastname & phone number. It's well known in the Richmond area & in auto racing.