So many people including many people in my family and community have never heard of Chiari one of the doctors at my place of work just found out recently that her one year old son has it and shes constantly asking me questions. I think it would be awesome to get a group of us together and try to organize a fundraiser or walk for Chiari research or to maybe help some of us who are opting in on surgery but cant afford it! My husband and my family really want to participate in it. Alot of my friends think Chiari is just a bad headache every now and then but my symptoms are much worse than that. I just want to try and raise some kind of awareness!!!