Chat - We're doing the best we can :)

General
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Hi Members,

I hope you are enjoying the site. We're having a blast running it and seeing all the wonderful connections and support that it creates.

We're all volunteers (no one is paid here, it's a completely volunteer site and we get our $ donated to us: http://www.indiegogo.com/Bens-Friends-Builds-Support-Groups-for-Patients-With-Rare-Diseases - the Moderators are all volunteers and love doing it because they get to help thousands of people. :)

A lot of folks have asked recently if we can have people in the chat 24 hours a day. Since we don't have paid staff, we can't do that. However, the good news is that there are a ton of members globally so no matter when you are on, there are good odds that someone across the world will be on too. :)

I hope you understand our limitations. We're doing the very best we can. If you'd like to know more about us, check out www.BensFriends.org or watch this 60 second Ben's Friends movie.

Thanks,

Scott

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I have been pretty incognito lately. I will try and become better about being on here. So many different tests have been going on with me that I have just been out of it. Exhaustion is my worst enemy - because it causes me to sleep so much. When I'm not working - I'm sleeping.

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What a wonderful note Becki. Thanks so much.

Becki Bowling said:

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Link to the Chat Room on the top links and here: http://www.chiarisupport.org/chat

Also when browsing from the web, there is a pop up chat on the bottom of the screen.