CFS Test was negative

So now I am back to square one. NL does not think the Chiari is the cause of my symptoms...even though the symptoms are what led him to do the MRI that found it. So now what? I do not want to live the rest of my life in misery. I need a second opinion, but want to get out of the Central Valley to have it done. Any suggestions for someone in SF of LA?

I agree wholeheartedly. Neurologists are a waste of time. Mine prescribes meds but doesn't know what to do with me. I only see her every 6 mos for prescriptions. You need to see a neurosurgeon. They are much better at explaining what is going on and helpful with finding treatment. Just be aware that most NS will recommend surgery as a treatment so don't be shocked if they say that. Surgery is the best (only) treatment for us right now. We need research desperately! I live in Indiana so I can't help you with a referral. Check under the resources and doctors tabs at the top. Under groups tab there may be a group for people from CA. Maybe they can help you :) Good luck.

Hopefully you'll be able to find someone close to you! The closest Chiari specialist to me is 5+ hours away. :( With the runaround I'm getting here, I may just have to bite the bullet and go to Seattle!

Good luck,
Katrina W.

Thanks everyone for the input. I guess my next question is how do I find and get an appointment with a NS. Do I need a referral if the NS is part of my PPO?