I was recently diagnosed with Chiari...the MRI results read 2cm....up until today when I went for my second opinon with the NS I truly thought in comparison to what I was reading on here that my herniation wasnt bad...what I didnt realize was that 2 cm actually means 20 mm...yikes...pretty significant difference. Plus I have a tumor that is 2 cm in the same area as the tonsils...Dr. scheduled me for a full spine Mri on August 14, and said there is no way around the surgery...I am scared to pieces...any words of wisdom here would be great!!
You are in my prayers
Hi and welcome to the group!!
Abby gave you get input..the book she mentioned is great and there is another onew I would suggest you get.."Contents Under Pressure " by Ray D'Alonzo.
It sounds like your doc is ontop of things..I say this b/c he is ordering a full spine MRI..that is to rule out a syrinx (fluid filled cyst on the spinal cord) Believe or not there are some surgeons that do not order a full spine MRI.
Use this site as a safe place to get info and suggestions and most importantly (in my opinion) make a few friend that you can lean on..let me tell you, the folks here are tops in my book. The gang here has picked me up when I was down and listen to my rants without judgement...they are all a God send to me.
Please let us know how you are doing...and always post any questions/issues ect ..
Take care,
Lori
MJ,
I also had an advanced situation. My surgeries were to save me from becoming a quadriplegic. I didn't have a choice. All I could think of was my daughter growing up without her Mother. I was terrified but I was more terrified for not being here for my family. Do you have a Neurosurgeon you are comfortable with , that has Chiari experience? That is very important. I hope & Pray everything works out for you. Please keep us posted and if you wanna talk...Just send me a message.
Tracy Z.