so here i was thinking i was getting to the end of this whole chiari journey. i was just going to pack it up and throw away the key. I swear i had a doctor tell me ive had so much imaging i should be glowing (reassuring- i know)
the CSF flow was the last thing he wanted done. went and got it done- drove the two hours to see the neurosurgeon who informed me they hadnt put me in a powerful enough MRI machine. yes- i had to do this all over. prior to 2014 when i hit my head and things got bad i didnt have a fear of closed spaces or anything close. but i have been shoved in so many small loud tubes i get sweaty thinking about it.
the neurosurgeon assured me i could just call for the results. got a call last week that he had gotten the results to my MRI and would like to schedule my appointment. i let the nurse know she should send the doctor and call me back. i was assured this would be just a phone call. she kind of stumbled and said 'let me see here, well it says something about abnormal flow so im sure he just wants you to come in to go over the information with you’
the information
that he could have gone over on the phone
but has decided i need to spend a whole day on again.
my headaches have gotten worse yes- and there was a day ALL I DREAMT OF was putting my life back together. but maybe i could live like this?
Is this just a bad dream i cannot wake up from? they give me hope to take it back?
this is a hard one, really hard. and i have no one who understands or even cares to understand, ive been a single mom for ^ years since my son was born.
Hi Cassie,
Sorry to hear you’re having such such a difficult time. I’m not able to offer any specific advice, but I wanted to offer some encouragement. Sounds like you’re dealing with a lot,
being a single mom without support while riding this CM roller coaster. The back and forth with the doctors can really get you down, Ive been there. You’ve come this far, and you can keep going. Do what you need to in order to take care of your child and yourself. Take your time, cry, nap, hug your little one and know you’re gonna come out of this. I can not tell you when or how, but you just have to keep pushing. I’ve been told the flow study is the one piece of info I need before any other recommendations can be made. Right now, I cannot afford to pay for them. Like you I’ve had so many images done Im starting to get concerned about the possible damages I’m accumlating. I can only imagine your frustration at this point. As frustrating and as difficult as it is right now, you can make it. Please remember you’re not alone. There are so many others here with CM who know your struggle.