Dr.Angeles in Eugene Or is doing a decopression .+ I have a bi-lateral shunt she is removing.I have adhisive arachnoiditis ceribral as well as lumbar.I am losing my speach.I am in a hoveround have been for almost two years.I have lost soo much. I can hardly lift my arms.I have pins and needles spraing up my arms and face.Terrible arm neak and leg pain.Absolutely cold heat intolerant.I have this weird sweating issue .I get sooo hot start pouring water.Then bone chillin cold I cant get warm.Severe waves of nausea.Soo much more. Need I go on.Please.Im scared.I have had other surgeries and lived.They have meds to help with pain!!OK I'm not as brave as I thought.HMMM.Run Away!!Right!How long befor I feel better??Whats the first and second day Like???Do you throw up right after.Augh!!I have with all mine.Do they make you sit up right after. Can you??How long do the headaces last???OOO!!Words of experiance and incouragement blessings prayers.Anything???
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Hi Twana,
I am sorry you are having such horrible symptoms. Everyone that has chronic pain needs pain mgmt just to function. The first day post op I dealt with a lot of swelling & pain. The second day the swelling was there but it wasn't quite as bad. Each day the pain got better. Walking helped a lot & staying hydrated. I know you are scared but please know everyone here understands. We will all be here for you and I will pray for you to find peace physically & mentally & that you will have a successful surgery.
You are not alone,
Tracy Z.
Hi Tracy. Im sorry you have to go through this too. Im sorry for anyoe who has it.It s soo scarry.I rember my frontal crainial head reconstruction.I was 18.Gee I wanted to rip the IVs out and run awayLOL I have lost alot in this illness.including friends and famlie.I pray they can forgive me for whatever mood I was in.This is a hard ride.Oh am I scared.I already am at max pain leavle.Something has to give.Thank you for your input and blessings and prayers.Blessings and prayers to you.
TracyZ said:
Hi Twana,
I am sorry you are having such horrible symptoms. Everyone that has chronic pain needs pain mgmt just to function. The first day post op I dealt with a lot of swelling & pain. The second day the swelling was there but it wasn't quite as bad. Each day the pain got better. Walking helped a lot & staying hydrated. I know you are scared but please know everyone here understands. We will all be here for you and I will pray for you to find peace physically & mentally & that you will have a successful surgery.
You are not alone,
Tracy Z.
You do loose people that you thought was close to you. It's very sad. They try very hard to understand , but they can't. I lost my best friend because I constantyly had to cancel anything we had planned. She felt like she couldn't depend on me. I have also lost some extended family . I would want to come home (5 hours away) so bad but couldn't physically or mentally. It still hurts me so bad. I know I would have been there for them no matter what. No one understands how much we do actually loose but other Chiarians. I am very fortunate to have found this discussion group. It has saved me in a way. I felt like I wasn't contributing anything to the world ( I have a Medical background) & this made me feel useless. Now I know there are others that understand. I want you to know that also.....We do understand & you can count on us to be there for you. You have been through so much....I am still praying for you...I Promise !!!
Tracy Z.
verI'm sorry for you. I know. I lost my sister. She was helping me I was paying her to come out and help cook some meals for my husband and I acouple days a week and help with stuff I couldnt do.I never asked anyone for anything. I used to be an ACTIVITY Director at an Alzhimers facility I had to quit a job I did for 8 yrs and loved I couldnt do it.My sister broke my heart. She saw I was haveing good as well as bad days.She kept coming up with weird stuff. When she approaced my husband with the fragile x sydrome. My husband said look we have spent over 50.ooo to find out what my wife has we are trying to deal with it.Please stop coming up with this stuff.She turned her back me.I never saw her agin.It has been a year.It was a blessing though.She takes care of mamaw she has Alzhimers.And her three year old grandaughter would come. I was soo sick.But always put on a smile for them.+ It was my B-day.I have issues here.Some things may never be repaired. A lady told me to call her up and forgive her??Life is short.Yea it is. When someone shows you who they are belive them. I do. This isnt the first time this has happened.Life is short .and we dont have to keep geetting hurt bcause its famlie.Sometimes putting distacne between you can make the heart grow fonder.I'm not there yet.I'm sorry about your best friend.That hurts too.I know they dont understand.They never will.Its got to happen to you.I am praing alot these days.I pray for you too. TY and take care.
TracyZ said:
You do loose people that you thought was close to you. It's very sad. They try very hard to understand , but they can't. I lost my best friend because I constantyly had to cancel anything we had planned. She felt like she couldn't depend on me. I have also lost some extended family . I would want to come home (5 hours away) so bad but couldn't physically or mentally. It still hurts me so bad. I know I would have been there for them no matter what. No one understands how much we do actually loose but other Chiarians. I am very fortunate to have found this discussion group. It has saved me in a way. I felt like I wasn't contributing anything to the world ( I have a Medical background) & this made me feel useless. Now I know there are others that understand. I want you to know that also.....We do understand & you can count on us to be there for you. You have been through so much....I am still praying for you...I Promise !!!
Tracy Z.