I take all these meds and yet here I remain with no help.. I see my normal Dr. again in a few weeks but everyone else is blowing off this feeling of something in the back of my throat. The pain and clicks in my neck are getting worse daily and now I have the pain that sears down my spine. Not sure what more I can tell them of whats going on feeling like they just don't get it?? The neurologist I finally got to see me said ohhh hun you just have recurrent migraines it has nothing to do with chiari at all. That is just a birth defect and your fine there! Have a cousin that told me the ticks in my neck are not good she had her decompression in 09 but hers is no longer available to see me. So now I walk around trying everything I can not to pop my neck cause once I do BAM instant pain from my neck to my head. So what I need to know is what can a person do to be taken serious cause nothing else I'm doing is working. (yep the er nurses have said drug seeker) Yet I pointed out i've refuse all narcotics and its in the med reports. So can anyone help pls!!
If you docs aren't helping you need to find new doctors! Not sure where you live, but see if you can find a doc who specializes in Chiari...if nothing else do a "meet and greet" and find a doctor who knows about Chiari and might be able to help you! (most offices will do a "meet and greet"/initial consultation either free or for $25...just to see if you'll be a good fit with that doctor).
Good luck!
Monique
Just keep trying. It's so hard.
Thanks Monique will try that I'm in Illinois the one dr I was offered retired he did my cousins decompression so there shot that idea. Soon as I send my lil bit to preschool it's phone city for me again will try the meet and greet and see how that works out!!! and thanks Gma7938!!! Trying the best I can!
ALL YOU CAN DO IS KEEP TRYING! YOU ARE YOUR BEST ADVOCATE! DON'T GIVE UP! IT SUCKS THAT IT IS SO HARD TO FIND A DOC TO LISTEN SOMETIMES! :o)
MONIQUE