Welcome Martha!


Welcome to Ben’s Friends Martha!

I remember recently talking to one of the patients on here that is doing the same thing that you are doing, but on behalf of her son. See if you can encourage your daughter to join this forum (but don’t push her to if she really doesn’t want to).

In any case, I want you to take this forum as an opportunity to learn more about the condition and the patient experience. If you can’t extract anything useful about the condition, then maybe you can take it as an opportunity to learn mroe about the patient experience in Chiari malformation. You never know, it could strengthen the bond between you and your daughter and help her understand that she is not alone in her struggles with Chiari!

Get involved in the discussions and dont hesitate to ask questions if you want to - this community is here for you!

Once again, I welcome you (and your daughter) to Ben’s Friends!