Welcome to Ben’s Friends, Amy! It’s great to have you all the way from Missouri (I’m in Toronto).
Reading your bio, this may be the first time I’ve ever met somebody that knows how to play the ukelele - it’s unusual to find someone that can.
It seems like you haven’t had much luck when it comes to treatment, and you’ll find that many patients on this forum have the same experience. I want to take this opportunity to encourage you to ask questions and get involved in the discussion - there are several members from Missouri that may be able to give you some advice and vice versa.
Once again, welcome to Ben’s Friends Amy!