A long story short.... Back in May 2012 - I had some issues with tingles in finger/thumb. Had an MRI in June or July and they found a couple different issues (Chairi, Syrinx, thickened spinal ligament). About the same time the tingles came...I had tailbone pain. At the time, I thought the tailbone pain was a muscle strain and it would go away eventually.
Fast forward to November...I finally went to various doctors about this tailbone pain.It only really bothers me when I sit down....and especially for long periods. They found nothing and have forwarded me to Orthopedics.
Fast forward to now..... After going to Orthopedic doctor and going thru 3 weeks of therapy doing various hip related exercises and taking ibuprofen for 4 weeks straight. The tailbone pain is still with me.
The therapist mentioned about seeing a chiropractor to get 'straightened out'. I am somewhat worried about seeing a chiropractor due to the syrinx. Afterall.... a previous doctor visit - they decided againest giving me a cortozone shot due to the syrinx. They didn't want to disturb it.....
Should I be concerned about going to a chiropractor with a syrinx? Has anyone done it?
Or could this tailbone pain be related to my chairi & syrinx? I wish they would just perform an MRI on my tailbone ..... but, I'm not the doctor.
I have another appointment with the Orthopedic doctor Dec. 21st - since the therapy didn't work. I'm supposed to bring along my MRI with me.....to show him the syrinx/chairi. Again - I'm not sure this could be all related but since it all started about the same time - is that such a bad 'assumption'?
The MRI was only the upper spine/neck area particularly the C6/C7 area. You can see multiple areas of fluid buildup on that picture. They were diagnosing 'tingling' in my right finger/thumb.
I think I'm convinced a Chiropractor is not for me. I'm not sure what the Orthopedic will say. I may just make an appointment with my Neurologist and talk to him.
Hi there…I was fortunate to be treated by the team at the University of Miami, Dr. Barth Greene and Allen Levy. They BOTH had told me I was very lucky I had not gone to a chiropractor, as I too had syrinx and would have been very very bad for me. They are not trained to deal with something so serious and you have a compromised spinal cord and functions. I was again so fortunate that my first and only surgery was done by these two experts on Chiari and I would take their recommendations and advice as pretty good. I hope that helps
I had to google it... I don't have any obvious signs of a sacral dimple. Or should I say...If there is one, its hiding behind a layer of FAT!! LOL
I'm certainly convinced not to see a chiropractor now..... Aside from Chairi...my back has always been good & healthy.
Just wondering if I should skip the Orthopedic appointment and call the Neurosurgeon and see what he suggests. I'm thinking an MRI of the lower back / buttocks would be nice.... never had one for that area.
Thanks for the info!
Beeba said:
Janster, please don't self diagnose with this very rudimentary test - but do you have a sacral dimple? Than can be a sign of tethered cord. Not really sure if you have tethered cord if you would not have this. Think of a band attached to fabric it will cause one area to pull in. If you have never heard of a sacral dimple - think a small indentation immediately above your butt crack. Sounds a bit indelicate. Lol. If you google it they show pictures that are obviously more dramatic. And I do have this (trust me - nothing like the pictures) I always thought everyone had it. Seen a lot of butts in my day but have never examined any until my daughter. The pediatrician pointed it out. I thought everyone was built that way!! And I have been tested for tethered cord and I do not have it. So you can have the dimple without tc but don't know if you can have tc without the dimple. Your tail bone is a cluster of bones at the end of your spine and they fuse as you grow with this they attach to the cord causing a vacuum effect=chiari. Hope this helps - sorry you know more about me then you cared to.
Saw the Orthopedic Doctor again....and he never suggested a Chiropractor (Thank God). Injected right where the pain is ..at the tailbone above my butt(pardon-hole). It's been two days and the cortisone is blending in....and I think its helping! Let's hope this pain doesn't come back!
Thanks for the replies and help!! Hope your holidays are special !!
