I underwent the decompression surgery in 2010 afterwards my symptoms never went away. I mentioned this to my neurosurgeon and all he said was that he did the best that he could and it was residual damage . Now years later I have all the same symptoms and new ones. I can no longer feel the inside of my mouth on the left side and seems like I haven’t been able to get a deep enough breathe in for months. About a year ago I started having a deep ache in my upper backand neck radiating down my right shoulder blade. I finally broke down and called my family doctor and now go in on Monday. What are the chances that the syringomyelia returned?
Thank you. I fell 2 years ago and had to be rushed to the hospital because my head was bleeding. The Dr ran a ct scan due to my concerns and had made a comment when I mentioned the syrinx about yup its still there. I was then told that everything looked fine with the scan and to just go home and rest. Ironic that I fell the night before my 2 year anniversary from my surgery.
Shirley, yes a new MRI, yes flex ext mri of C-spine to check for cranial cervical instability. I’m sorry you are still having these issues and think you may be wise to see a new NS who understands all the tag-along-issues that come along with Chiari. Did you have a full decomoression with duraplasty? Do you have EDS?
Jenn 
Yes I had a full decompression with duraplasty…that is what we were told…what is EDS?
Ehlers Danlos Syndrome is a hypermobility disorder. A collagen elastin problem causes soft tissues to stretchy and lax. Lax ligaments allow CRANIO cervical joint and lower cervical joints to become unstable. This instability will Streatch, and deform spinal cord and or brain stem. Symptoms mimic Chiari, most NSs are not aware of Cranio cervical instability in Chiari patients, so don’t screen for it. CCI is present with about 20% of chiarians. There several kinds of CCI: vertebrael instability (translational movement), basilar invagination, retroflexed odontoid, sharp clivo-axial angle.
The NSs who diagnose and treat CCI in chiari patients are:
Henderson, MD
Sandhu, MD
Patel, SC
Rosner, NC
Bolognese, NY
TCI, NY
Trumble, FL
Frim, IL
I’m sure there others who I have not heard about.
These are some great videos about EDS and CCI
CSFinfo.org
Videos
Greater metro area
All videos about Chiari/CCI/EDS
Google the Beighton Criteria and the Beighton Criteria to get an idea of how EDS is diagnosed.
Keep at it you will find the help you need…
Jenn
Thank you…I will also post on what my family Dr had to say on Monday and what they will be doing
I not very flexible…lol…right now I can’t lift my right arm past mid height to shoulder without it hurting to the point of being nauseous. I lived in denial for a while I guess kept telling myself that I was just tired.
You do not need to be flexible right now- as we age hypermobile people often have more injuries and arthritis FROM the hypermobility which causes stiffness and limited range later on. Please take time to consider all of the symptoms, take the tests. I fought the EDS diagnosis for a long time, turns out I was partially dislocating my head from my neck from my head every time I bent or extended. I didn’t think I was special enough to have have Chiari AND EDS…well I score 9 out of 9 for EDS and have a few more of the tag a long diagnosis.
Tomorrow morning I am having a ct scan of my brain and neck and xrays on my neck. My family Dr is doing a new referral for me to see a different neurologist. MRI and ct scans from 2011 and 2012 clearly show that the syrinx was present
I had decompression surgery in 2002 but my symptoms never went away but I had been told they might not go anyway. I’ve had new ones appear over the years & had several mrI scans & apparently my syrinx has shrunk so "why ru worrying?"It feels like it’s just me getting this sometimes as I’m told constantly that the surgery has fixed everything!
Not sure if I believe the link between syrinx & chiari, coz my symptoms have definitely got worse the last few years 
Tbh I’ve given up on doctors! Hope you get some answers for yourself though xx