Well, yet another headache. It stinks that I can’t even play tennis without getting a headache. But I guess I shouldn’t complain about it, I can still do fun stuff and play other sports but I guess I’ll have to accept the consequences. Do other people who have had a decompression surgery for chiari malformation still have headaches when the exercise or play sports, or do I have some kind of problem? Does that mean I have to have a 2nd surgery? My doctor doesn’t seem to think so, he say’s that my last MRI showed that things looked a lot better. But that still doesn’t stop me from worrying about my health. Not to mention that it is still so annoying and upsetting that I can only do certain things for a limited time until my head starts to hurt.
hi sam
sorry that you feel that way, and i understand how frastrasing it can,
but having sugery is not a cure, it is meant to relieve problems. chiari you have for the rest of your life, its dawnting i know, but atleast your alive, you have to learn your limits to how your body copes with things, enjoy what you can, while you can, alot of us can not do anything,
i envy that your still able to enjoy things, im very limited, and want to cry and scream and yell, but it doesnt get me anywhere, i make the most of it,
so enjoy it as it is, while you can,
how long ago did you have surgery???
Thanks, it can be frustrating at times but I do think I am getting a little bit better at coping with the situation. I do realize that a lot of people have it far worse than me. I find myself forgetting that and thinking that I am the only one in the world with chiari, but it does help to be reminded that other people do in fact, have it far worse than me. I think everyone with chiari has times that they want to scream and yell but as you said you have to make the most of it because it doesn’t get you anywhere. And that is a very hard thing to do but in the end I think it makes you feel better. I was diagnosed with chiari around October 20 2008 and had my surgery within 10 days.
hey again
i need reminding too, and i get angry at people for doing it,
i think at times we cope really well, and other times we crumble. today my sister told me it was ok to just sit there in my dressing gown all day and take it easy,(who cares she said), i havent left the houst in a week, its school holidays here at the moment, so i like to not move, but my kids are driving me nuts, so im afraid i will have to go outside and something with them, the problem is that when you feel bad, u would rather just sit there,
whoo that was fast from finding it and fixing it, how did you manage that??
what was there reason for surgery, did you have a fluid blockage? or over crowding?
so yelling can make you feel better, so its worth it,
i think anyway,
i go and see surgeon next week, im scared he will laugh at me,
joelene
Hey Joelene, I think sometimes yelling can in fact make you feel better too, you are exactly right!! My surgeon was Dr. Smyth at Childrens Hospital in St. Louis. He was great, and understood me so well. And the surgery was a decompresion surgery. The rest of my story is on “my page” and I added on to my story in the chat discussion “introduce yourself”. I will be praying for you when you go see the sugeon!
joelene hossack said:
hey again
i need reminding too, and i get angry at people for doing it,
i think at times we cope really well, and other times we crumble. today my sister told me it was ok to just sit there in my dressing gown all day and take it easy,(who cares she said), i havent left the houst in a week, its school holidays here at the moment, so i like to not move, but my kids are driving me nuts, so im afraid i will have to go outside and something with them, the problem is that when you feel bad, u would rather just sit there,
whoo that was fast from finding it and fixing it, how did you manage that??
what was there reason for surgery, did you have a fluid blockage? or over crowding?
so yelling can make you feel better, so its worth it,
i think anyway,
i go and see surgeon next week, im scared he will laugh at me,
joelene