So this is all new to me, I was diagnosed a few months ago and after reading a lot, I am noticing that I have had many of the symptoms for years, just never knew I wasn't really a clutz and that walking into walls and furniture wasn't normal. But here is something that is really starting to bother me. I have had a shaking problem for a while now. It has typically been when I get real tired...I get cold and shake until I take a super hot bath to warm up (This is usually at night, regardless of how much I burrow under the covers or cuddle up with the husband, I cannot warm up or stop shaking until I have that hot bath...hot enough to turn my skin bright pink) I have also had an issue first thing in the mornings with my hands shaking so bad it's hard to grab the phone to shut my alarm off or to grab a cup of coffee. Now lately I have noticed I am shaking more and more often, most of the time almost a steady tremble....sometimes it gets pretty bad, hard to open things or turn pages. Is this normal for CM??? And if so, is there ANYTHING I can do to stop it? (While being in a hottub 24-7 sounds LOVELY, it really isnt gonna happen, lol)
I met with a NS and he wanted me to see a regular neurologist because he isnt convinced my headaches are caused by the Chiari...because I am only at 7, he says I am borderline. I tried to explain I have the other issues, balance problems, vertigo, constant dizziness, blinding pain when I laugh or strain at all...but he simply said "migraines" because my mom and son have them. So...on to the neurologist who said it's probably somewhat a combination. So far the migraine meds have done nothing, so we are starting some new pain med (something I spray up my nose, but if it isnt covered by my ins then no way). Now I dont have a thyroid, it had to come out about 8 years ago due to cysts in it. I recently had my levels checked and I was fine, but will have them checked again. I put a call into my neurologist and am waiting for a reply regarding the shakes. Ugh. I had NO idea it would be such a run around. It seems quite simple...there is an MRI, it shows a Chiari, I have symptoms...so TREAT them. Why do the drs seem to want to discount what the MRI says and what I say?
Thanks so much for your imput, I am going to check out the page now. =)
I also have the same kind of shakes and get cold very easily. I also have a 7 mm herniation and was told by my NS that my symptoms which are much like yours might not be related to Chiari. I also have Raynaud's disease too though. It is a circulatory problem with my hands and feet. Basically by blood vessels in my hands and feet contract when I am very cold and then my feet and hands turn white and purple until I soak them. I often soak in the tub and can never seem to get warm. Let's just say during these cold months our gas bill is unbelievable! I hope you get some answers, I am not sure if the shaking is related to Chiari or not but as I read your post, I swear I could of wrote it because it sounds identical to me. Good luck!
Myinerchld said:
I met with a NS and he wanted me to see a regular neurologist because he isnt convinced my headaches are caused by the Chiari...because I am only at 7, he says I am borderline. I tried to explain I have the other issues, balance problems, vertigo, constant dizziness, blinding pain when I laugh or strain at all...but he simply said "migraines" because my mom and son have them. So...on to the neurologist who said it's probably somewhat a combination. So far the migraine meds have done nothing, so we are starting some new pain med (something I spray up my nose, but if it isnt covered by my ins then no way). Now I dont have a thyroid, it had to come out about 8 years ago due to cysts in it. I recently had my levels checked and I was fine, but will have them checked again. I put a call into my neurologist and am waiting for a reply regarding the shakes. Ugh. I had NO idea it would be such a run around. It seems quite simple...there is an MRI, it shows a Chiari, I have symptoms...so TREAT them. Why do the drs seem to want to discount what the MRI says and what I say?
Thanks so much for your imput, I am going to check out the page now. =)