How long ago did you have the duroplasty? My daughter had one on the 9th of July…she is 16…she also has Basilar invagination…we had the surgery in order to get the syrinx removed in her C2 to c7…as she also has scoliosis and the spine surgeon said that d syrinx needed to be removed before he could fuse the spine…she had no symptoms what so ever that made her uncomfortable…no pain in the neck or anything…just a slight numbness in her left fingers…now after the surgery she walked to the washroom holding hands and though she had severe headaches her vision o.k…just a bit of pressure…but on returning home she is having difficulty in focussing on the t.v and other stuff…though she can even see a mosquito she is really depressed about her focussing problem and she is feeling very weak and is no longer even standing on her own…she wants to lie down most of the time…and is complaining of a slight stretching feeling near her left cheek and upper lip…this happens for a few seconds and while this is happening I noticed her left eye watering and the area going red…she is really getting scared that is this a sign of paralysis? Has any of you ever gone through this experience after the duroplasty?..please help me with some answers…or any information…will all this go away with time?..Is this normal after the surgery?..I am going to have her vision checked hoping that this is the cause of her not being able to focus…please update me…desperately awaiting some replies…regards…Ambareen
I had my decompression surgery on June 19, so I’m about 6-weeks out. But I also had to have a second surgery for a CSF leak on July 23. I definitely was weaker after surgery, and had some difficulty walking and wanting to lay down more than get up most days. The “pulling” she’s talking about may be the same thing I call “twitches”. I didn’t have the muscle twitches before surgery but have ha them since. I get them mostly in my legs and hands though. It is part of the healing process is what I was told.
Emmaline, I am so glad to know it is not just me. I’ve heard “that’s the Chiari” I’ve heard “those were my symptoms before surger” I’ve heard they’ve never heard of it, I’ve been given the look of “wth are you talking about”, etc.
So, I’m glad to know it isn’t just me and that MAYBE it’ll get better.
I don't have a NL. The one I had a quack. I found my own NS and he has been amazing. He actually keeps up with all the Chiari research, he is pretty awesome. I see him again on Friday, so I haven't asked about this stuff yet. :)
Some of the sensory overload are side effects to meds I was on neurotin and a higher dose and I couldnt take noise at all or even the feeling of my clothes on my arms was too much. They reduced my neurotin and I was fine. It was making me crazy at work I’d be in a tank top one minute and a sweatshirt and gloves the next. I did my own research on side effects and everything I was going through were rare side effects of the medication that was suppose to help. I’d look up meds your on and see possible side effects.
The only meds I'm on are Hydrocodone and Percocet. I do know the Percocet will mess with my hearing a bit (things seem really loud) but I do not take it very often.