My Fiance has Chiari and has undergone decompression. He also has ridges on top of his head, visible when his hair is shaved short and you can feel them when you run your hand across his head, like long bumps that run paralel. Neurologists he has seen say that these ridges have no relation to Chiari. However, we met another Chiari survivor that also has the same ridges on top of his head. I am wondering if anyone else on here has the same thing. Through a Google search I found out the official name of it is; Cutis Verticis Gyrata.
Since insomnia is such a wonderful thing, I followed up on some of your research Beeba. Here is some more info I found on Medscape, Quite a good sight especially if you have a handle on medical terminology - was referred to it by my OT who is also a RN). Anyhow back on topic here is some of what I found:
Secondary cases of cutis verticis gyrata are associated with the following underlying diseases:
I tried to make it stick out but the Ehler-Danlos Syndrome has connection to Chiari, something you might want to discuss with the docs. I hope all is well with him and if he wants a guy perspective, tell him to give me a hollar.
No worries I didn’t take any offense at all…we have jokes about it a lot. To answer yr question he had has officially been diagnosed because every physican he’s talked to about it said its nothing. The pictures online are extreme cases TJ’s is not as pronounced.