Anyone have pressure that makes your upper gums/teeth feel funny? This just started several weeks ago but really bothersome. Other symptoms include non-stop pressure/pain in head including forehead, nose, eyes, and around the head in back. Hurts worse when bending over, laughing, lying my head down, coughing, and just even looking downward, riding in a car and sometimes just walking. I’ve also noticed pain/pressure worse with weather changes. I have constant ringing in ears, with whooshing noises also. Also pulsating happens often. I am light sensitive and many times feel like I am blacking out when getting up from a sitting position or after bending over or stooping. I have a tough time getting quality sleep and have a difficult time swallowing at times (even liquids). Also have tingling, cold/numb feeling in hands at times and other random symptoms. It seems like a lot but several of these symptoms I’ve had my whole life.
I started all this with horrible neck and shoulder pain around a year ago and then the never ending pressure headaches started in July. It’s a real long story but after seeing several doctors I had a MRI and it was found I had a 2.6 x 2.5 x 1.9 cm Meningioma brain tumor as well as a tonsillar ectopia of around 4-5 mm. I’ve seen a few NS which all seem to think the brain tumor is not causing my head pressure/pain and will be followed up with MRI to see if it is growing. If it grows I will have to have a craniotomy or if I begin having seizures I may need to have surgery. They will do surgery now but can’t say it will help my head. One said I did not have Chairi and the other two mentioned that I did and it could cause headaches but didn’t seem too concerned. I’ve been going to a chiropractor, PT, and tried a few medicines which I am still on one med. I tried headache injections which did nothing. The PT and chiro treatments have helped my neck and shoulders but still have some neck issues and my shoulders have hurt some the past few weeks. I worked up until October but just couldn’t keep it up. In the midst of all this (before the MRI) I was diagnosed with Fibromyalgia. (Which I’m not really sure I have)
I have an appointment with a different NS tomorrow. I was told he does treat Chiari patients, so we will see how it goes. Thanks for any input or insight, I just hope I can find some help. I have been reading different sites regarding Chiari and was amazed about my symptoms and how many of them are mentioned with Chiari. All the best to each of you and your own journeys.
