Pineal Gland Cysts

While reading the MRI report yesterday, I also found out that I have a massive pineal gland cyst in my brain. It measures 1.6cm x 1.2cm. I was wondering if anyone else here in the group has been diagnosed with one of these cysts.

The brain MRI that I had last March was clear, so this is new. And, from what I've read, this is more than triple the size of a standard cyst. The vast majority of them are less than 5mm in diameter. They are largely asymptomatic, but can produce symptoms such as dizziness, blurred vision, headaches and clumsiness. I have all of those symptoms. Then again, the majority of those are also Chiari symptoms, too.

I was curious, (and I'm just thinking out loud here), could this be Chiari related? Pineal gland cysts are filled with CSF, the same fluid that you find in a syrinx. Instead of it collecting in your spinal cord and forming a cyst, it has collected in your brain. From what I have read, for these things to form, it generally has to be brought on by some sort of head trauma (whiplash, car accident, major fall). I haven't had anything in the last year.

I'm seeing a new neurologist tomorrow. My neuro of three years refuses to admit that I have a Chiari, even though I have numerous MRIs stating that I do. He refuses to refer me to a neurosurgeon as well. He believes that his expertise outweighs the numerous radiologists that have read my films over the last nine months. He is attributing all of my symptoms, bowel incontinence included, to diabetes. So, it's time to find someone that isn't an arrogant prick.

The thing is, I don't want to go into my first appointment with 200 questions and a dozen theories and come across as this know it all patient that freaked himself out by reading Web MD.

OMG Twitch, I don't even know what to say. That is a whole lot of "heavy" if you ask me. I hope you have a good outcome at your appointment tomorrow. Let us know it goes.

I don't think you're being a know it all.. It's being hands on with your health and wanting to get some answers.

Your friend,

Lori D