I recently had two episodes of overdosing on a drug known to you as KLONOPIN. I ended up in ICU both times with a breathing tube down my throat .I don`t really know if I was trying to kill myself,but all I know is that I wanted some relief from the pain.This all started when the pain medication I was taking caused a problem called Hypoalgesia .This is where the pain medication causes additional pain on top of the same pain I already have .It feels like your kidneys are going to explode.Anyway I went to my principle doctor and he had never heard of it (that doesn`t surprise me )so he started to ween me of the medication I was on ,but not suggesting an alternative for pain relief .So after coming of all medication for pain after fifteen years of different medications I am now left without anything as my doctor thinks ( and get this )" I don`t look any different without them." I have tried several medical practices but they too find my case to complex and so decided not to take me as a patient I have just about exhausted any medical practices in my area and i`m at my wits end .Only people on this site know the feeling of connective tissue problems along with the added monster of Chiari , to make things worse.either one is bad enough , but dealing with both is worse.Also knowing my children and grandchildren have both , breaks my already broken heart .Anyway I have two attempted suicides on my medical records and my doctor won`t prescribe pain medication stronger than paracetamol,and a lot of good that does.I know nobody has the answer for me , but I know that I get compassionate support from everyone here.Bless all of you ,and have a very very HAPPY CHRISTMAS.
I'm praying you'll have a peaceful, pain free, and joyous Christmas! I hope the New Year will bring you the medical treatment you need and deserve! Much love Putty!
Thank you for your kind thoughts , but I`m afraid I am in a very strange place right now.You might say I`m in a type of " limbo" or a "vortex" between reality and somewhere else.Everything seems so surreal that I don`t know what to do.I thought doctors were supposed to help ,but they just run the other way when the going gets rough.Yes and my problems are "tough " but their has to someone out there that can help.It`s going to be a difficult Christmas but I will make it the best that I can.For my families sake.
Thank you all once again and I hope you have the best Christmas ever.Even more love ,PUTTY!
There is one important question I would like to ask , and that is, does anyone with Chiari and or connective tissue disorders , suffer from the inability to think in a rational way.?That is to say, we approach problems or situations in a different way to the majority of people.Sometimes to our disadvantage.But some other times it actually helps,either us,or other people.I don`t want this to be taken the wrong way,but it makes me feel different .Sometimes in a good way but in other times, not so good.I`m not talking about the pain factor,but just the way we think and try to solve problems.Anyway I`m starting to ramble and my memory has deteriorated drastically ,almost to a mild dementia situation.Does anyone else suffer these type of problems or is it just me?
Once again have a fantastic Christmas,many thanks and bless you all.Lots of hugs..!!! = ).......
Thanks for the advice Nykki.I have tried pain patches in the past ,but they did not seem to help much.I went to a major pain clinic in our state that I have been going to for fifteen years,when it opened,and when it was a tiny little office in the hospitals backwaters.I have seen it grow over the years to the major unit that it is today.This time they have offered me a program that they call"ADAPT"which covers cognitive issues and exercise with discussion groups.This all sounds very nice but they don`t have a place for six months,and then because it is so far away ,the only cheap accommodation is $100 each night for three weeks.Not to mention that this condition makes me exercise intolerant.I know I sound very negative at the moment and I have done things that have not helped my case ,but I will keep trying to find someone to help.
Thanks Nykki I know you have major pain issues yourself and I`m grateful you took time to give me advice even though you have huge problems .I wish you and your family a very happy and painless Christmas.Bless you and thanks again.
I would also suggest finding a more specialized physician. I have found that my family doctor is of very little help (but she admits she's clueless and pretty much does whatever I ask her to.) But have you tried contacting your neurologist or neurosurgeon? They may be more able to help you with the pain problem if it is caused by your nervous system. I would also recommend seeing a Nephrologist at least once to assess your kidney's and their function. Medications like Klonipin, Valium, etc. can have lasting effects on the kidneys too. If you're taking things like Wellbutrin, Depakote, Lithium, etc. you should also have regular blood work. I know it is so hard when you're in pain and NOTHING helps. When you get to the point of being in so much pain, go to the ER. I know they are horribly educated with specialist diseases, but let them know you are willing to OD to alleviate the pain. ((You'll end up there anyways-so save your kidneys a little.)) Also, see a therapist, counselor, psychiatrist, etc. Not just because of the OD, but because it can be SO helpful to have someone to just dump all your problems on! I work in the mental health field and I still need the same help. I just like having someone there that is empathetic and helpful. And if you EVER feel like taking your own life, call this number. They can't take away your physical pain, but they can help talk you through some stuff! 1 (800) ■■■■■■■■. Please call them! It's the National Suicide Crisis Hotline. That's what it is there for! I will be praying for you. XOXO
Thank you Nykki and the Friendly Fishing person.I think I have to explain something to be clear about where I am.When I took the Klonipn ,it was because the doctor at my practice and the pain clinic doctor at the time agreed to take me off all pain medications.They left me with the bottle of Klonipin to help with the transition.In my medical notes it states that I have a bad reaction to all benzodiazepines ,as it severely effects my mental state,to the point that I did not even realize how many I was taking.But I needed something to help stop the other drugs.I thought I could manage with that arrangement ,but obviously I could not.The Klonipin has left me with a clouded head and bad judgement since then,but I am slowly improving.So you see I don`t think I was trying to kill myself , but it was a terrible misjudgment on my part , but particularly on the doctors involved.I have seen a neurologist and Ns ,but I will have to seek out more as the surgeon I saw would not operate due to cervical instability.My Autonomic Nervous System is in a terrible state and if I printed out the number of conditions I suffer from,it would go down the length of an A4 page.I am just trying to say why I think doctors would rather me be treated by someone else.I have seen counselors and psychciatrist and I don`t take any mood altering drugs ,as they to have a bad effect on me.Anyway I hope that explains a little bit more and before I forget ,I have had nerve blocks before but without success .I think the worst part is the loss of feeling in my hands,arms and legs and not knowing if it is coming from the Chiari or the degenerated discs in my spine.I just can`t believe that some doctors today can be that uncaring.
Thanks again for your concern ,but as long as I don`t have benzodiazepines I should be OK. MERRY CHRISTMAS and thanks yet again.Bless you all.