New Here

Hey All,

I have a Chiari that is 14 mm. I also have 15 lesions in my brain. I have known about the lesions since 2007, the neurologist thought I had MS. I just saw a new neurologist last week. He says there isn't much change since 2007 and doesn't think I have MS after all. I have numbness on the left half of my face and my left hand. My skull has hurt since I was younger. I didn't learn I had my Chiari until 2007. Over the last year my skull pain has increased, I have trouble sleeping because of the pain and pressure in my skull. I have an appointment with a neurosurgeon on December 23, my Chiari was 10.3 in June 2013 and I had a Ct 3 days ago that says it is 14 mm. I am anxious to see if this can be causing all my problems. I want to know if anyone has a Chiari as big as mine? Please let me know if anyone does.

Thanks

Edie

Mine was 10mm but I have a friend who had one 20mm and I know others on this board have had them that size or larger. It very well could be the cause of some or all of your symptoms. Most NS now feel that it isn't the size of the herniation that causes the symptoms but rather the amount of csf being blocked. I would request a CINE MRI at your visit to see what your csf flow is looking like! Best wishes!

Mine was A little over 13 mm and big from the surgeon and, I’m currently in the hospital recovering right now and should be coming home today. If you’re having any symptoms I would suggest you finally get it taken care of mine was 7 mm in 2005 and had progressed to over 13 at the present date. I didn’t even know that I had it! To put all of the symptoms as being related to other stupid things. Chat if you want even if I’m a little slow brained right now.

Mine waS a 25 mm. I've had 2 decompression s since March. But I have also heard it is not the size that matters but the symptoms.

Edie, I hope you get validated at your NS appointment. Are your symptoms Chiari? PROBABLY!! Honestly there is more than one medical affliction that can cause pain in your head, but we know for sure that you have Chiari, so that should never be off the table or ignored! I hope you some answers about the lesions too.

Jenn