Hello All,
Like many, I’m new to this forum, and am quickly gaining such comfort in knowing it’s here and available for review and outreach. Thank you all in advance for your time.
I’ve recently been diagnosed with Chiari - 5.5mm herniation on the right, after a whirlwind of symptoms including the following:
• Weakness in right arm
• Decreased fine motor skills in right hand
• Cramping in calves and feet
• Body wide fasiculations (i.e., twitches, muscle
spasms)
• Tingling and faint numbness in feet
• Slight difficulty raising right foot (especially when
driving)
• Balance issues
• Trouble swallowing
• Right shoulder pain
• Severe neck pain
• Headaches
• Occular migraine in right eye
• Occasional brain fog
Because these symptoms so closely parallel other neurological disorders, I continue to be riddled with anxiety that there is perhaps another underlying condition, like ALS, though my EMG came back clean, as did several MRI’s for MS lesions.
I’m a working professional and run my own company, I’m the wife of an incredible man, and the mother to a beautiful four year old girl who steals my heart with every beat.
I’m trying to stay positive (because isn’t life grand!:), however these symptoms are beginning to feel quite overwhelming and are greatly impeding upon my quality of life - despite my many blessings.
Does anyone else experience body wide fasiculations (muscle spasms and twitching)? My neurologist said it may be Benign Fasiculation Syndrome, and has not thus far been the best advocate for me and further Chiari treatment options.
I might add that during my quest for diagnosis, I was told I’m anemic (which was new), B12 deficient and Vitamin D deficient.
Any and all insight is so greatly welcomed and much appreciated.
Well wishes to all!
JConger