Mayo Clinic: Yes or No for Chiari / EDS III / CCI?

The Mayo Clinic is obviously world renowned, but I've heard many mixed reviews regarding their ability/willingness to diagnose and treat Chiari, Ehlers-Danos III - Hypermobility, and Craniocervical Instability (CCI). Some people say Mayo is great at evaluating these conditions and others say they're not. I've also heard some say that Rochester is good, but Jacksonville is not.

Does anyone have any thoughts? Have you been to Mayo? Anyone out there that has some combination of Chiari, EDS III, and CCI?

Am desperately in need of some help and recommendations from those of you that may have been through this already. Please friend or private message me if you would prefer to share your experience privately.

Hi kris278, I'm sure people will give you some feedback but I do need to ensure that responses stay within the community guidelines as we are unable to have negative reviews of doctors, hospitals or clinics for legal reasons. JulesG

Understood completely! Thanks, JulesG :)

Thanks, kris :-)