Im having a bit of a "down" day.. I have been fine for the last month - feeling very positive etc.
And then - BAM! my symptoms are back, i feel weak, "off" and pressure in the front of my head when I bend over.
Its so hard, because I seriously am in two minds about the surgery. I dont think I could cope if I had the surgery and it didnt work...
im just venting to be honest, its hard to think I could be like this forever. forever is a long time. and im not myself anymore.. im not the bubbly person i used to be (if you go back 2 yrs)
It hurts when people dont understand what you're going thorugh.. like you have to justify yourself everytime you dont feel "with it" or up to doing anying.. or evening zoning out of conversations (no matter how hard you try to concentrate)
I remember when my NS was showing me my MRI.. he mentioned that my brain stem was "moulded"?? explaining that it should be rounded sitting proudly in its own space.
Does this mean that the i would still have neurological symptoms if i went through with decompression??
I just dont really understand what this means about my brain stem.. is this part and parcel with chiari.. because i guess its so crowded up there!? lol
Thanks beeba, i am currently trying to log my symptoms. And i have planned to see my NS in a year… because my issues are so varied and intermittent i definitely dont want to make a rushed decision about surgery.
just like you… when im having a good day/week… you forget about the bad days and i say i want another child too 
my symptoms have been gradually coming back this last week… so yesterdat and today have been the pits 
Im getting dizzy/breathless when im blowing on my daughters food to cool it down… and cant play with her… and that really gets me down
Im definitely continuing the wait and see approach. but on bad days it does make me question/investigate the surgery more xx